← Return to Stage 3 Kidney Disease and Diet: What can I eat?

Discussion

Stage 3 Kidney Disease and Diet: What can I eat?

Kidney & Bladder | Last Active: Mar 17 9:38am | Replies (756)

Comment receiving replies
@cehunt57

@rosemarya, thank you for the introduction to @kamama94. It is flattering. From her postings that I’ve seen it sounds like she has a pretty good handle on her dietary situation. I also am unsure of how to post links but there is a webinar offered by AKF (American Kidney Fund) on “Eating healthy with diabetes and kidney disease” on Wed, Nov, 28, 2018. I found this on Facebook and just registered for it. I thought it would be useful information for me as I deal with both ailments. I know many others do too. There is another conversation called “Confused About Diet for Stage 3 or 4 Chronic Kidney Disease (CKD)” that is part of the Discussion Kidney & Bladder. Some of those folk might find this webinar helpful.

Thank you for asking how I am feeling these days. I feel ok but I’ll try to provide a quick update. In September I went to Mayo for my annual pretransplant review. My GFR was 29 and my UNOS transplant listing status was changed to “inactive” for now. This means my kidney function is currently stable and I’m too healthy for a kidney transplant now. This is great since the transplant list is long and my search for a living kidney donor has not gone well. On the diabetes side of things I’m not doing so well. My beloved pancreas transplant (13 years now) is not keeping up. The endocrinologist I saw in September at Mayo emphatically declared that I am now a type 2 diabetic. He laid out some treatment options and we chose a non insulin injection for type 2 along with the basal insulin that I’m currently taking. Problem is my insurance doesn’t cover the new med and the insurance suggested alternatives are not appropriate for someone with my level of CKD! We’ve been going around in circles with departments at the insurance/pharmacy associates and 2 departments at Mayo that the physician works out of to get a decision on an appeal. This has been going on for months. 😒😔☹️

Jump to this post


Replies to "@rosemarya, thank you for the introduction to @kamama94. It is flattering. From her postings that I’ve..."

Webinar: Eating healthy with diabetes and kidney disease

Wednesday, November 28, 2018 from 1:00 - 2:00 p.m. EST
Speaker: Lori Martinez-Hassett, RD, CSR,
Topics: Diabetes • Diet • ESRD • Nutrition
http://www.kidneyfund.org/training/webinars/eating-healthy-with-diabetes-and-kidney-disease.html

@nosurgery, @mlmcg, @trishanna, @kamama94, @carnes, @2011panc

Cehunt, It is good to hear from you. I knew that you were going to be going to Mayo, and I am happy for the update.

You are on quite journey, both good and not so good things going on. I know how diligent you are about taking care of you. And I admire your determination and your desire to keep on learning more about how to best approach your conditions.
I can almost sense the dizzying merry-go-round / tug of war that you are experiencing currently. I hope that a solution will soon happen so you can continue to get the treatment that you need. It sounds like you are satisfied with effects of the new med. Keep in touch and let me know how this turns out.
A question - If the insurance won't cooperate, what about assistance from the Chronic Disease fund or some similar nonprofit. I feel sure that the pharmacict would be able to advise you where you might make a contact.

Thank you for sharing the information. I just posted it to both discussions.

Hugs