← Return to Stage 3 Kidney Disease and Diet: What can I eat?

Discussion
carnes (@carnes)

Stage 3 Kidney Disease and Diet: What can I eat?

Kidney & Bladder | Last Active: 5 hours ago | Replies (471)

Comment receiving replies
@rosemarya

@cehunt57, I want to introduce a new member, @kamama94. Do you have any thoghts/experience that you would like to add to this conversation?

How are you feeling these days? I am thinkng about you. Rosemary

Jump to this post


Replies to "@cehunt57, I want to introduce a new member, @kamama94. Do you have any thoghts/experience that you..."

@rosemarya, thank you for the introduction to @kamama94. It is flattering. From her postings that I’ve seen it sounds like she has a pretty good handle on her dietary situation. I also am unsure of how to post links but there is a webinar offered by AKF (American Kidney Fund) on “Eating healthy with diabetes and kidney disease” on Wed, Nov, 28, 2018. I found this on Facebook and just registered for it. I thought it would be useful information for me as I deal with both ailments. I know many others do too. There is another conversation called “Confused About Diet for Stage 3 or 4 Chronic Kidney Disease (CKD)” that is part of the Discussion Kidney & Bladder. Some of those folk might find this webinar helpful.

Thank you for asking how I am feeling these days. I feel ok but I’ll try to provide a quick update. In September I went to Mayo for my annual pretransplant review. My GFR was 29 and my UNOS transplant listing status was changed to “inactive” for now. This means my kidney function is currently stable and I’m too healthy for a kidney transplant now. This is great since the transplant list is long and my search for a living kidney donor has not gone well. On the diabetes side of things I’m not doing so well. My beloved pancreas transplant (13 years now) is not keeping up. The endocrinologist I saw in September at Mayo emphatically declared that I am now a type 2 diabetic. He laid out some treatment options and we chose a non insulin injection for type 2 along with the basal insulin that I’m currently taking. Problem is my insurance doesn’t cover the new med and the insurance suggested alternatives are not appropriate for someone with my level of CKD! We’ve been going around in circles with departments at the insurance/pharmacy associates and 2 departments at Mayo that the physician works out of to get a decision on an appeal. This has been going on for months. 😒😔☹️