Anyone out there diagnosed with Pudendal Neuralgia?

Posted by LeighO57 @leigho55, Jun 5, 2018

I have not been on connect for quite a while since I have only recently received a diagnosis (one of many probably to come) I am looking for someone/anyone who has the pain from a surgical injury of sorts to this nerve to talk to. Is there anyone out there with Pudendal Neuralgia on connect? Thank you!

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Could You Plz Introduce A Good Doctor For Possible Pudendal Neuralgia?

My mother has chornic pelvic pain , with multiple steroid shot to pelvic region but she has burning pain and I want to take her to Mayo clinic or other places if you know a good doctor? Thanks

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Hello @alexking44 and welcome to Mayo Connect.

I am sorry to hear about your mom's chronic pain. That is so difficult to live with. Has she been diagnosed with Pudendal Neuralgia by another doctor? Were there any surgeries, cancer treatment, etc. that led to her pain?

If you are interested in finding a doctor at Mayo Clinic, here is the link with information about calling for an appointment http://mayocl.in/1mtmR63. They will be glad to help you find the correct physician for your mom to see.

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@alexking44

Could You Plz Introduce A Good Doctor For Possible Pudendal Neuralgia?

My mother has chornic pelvic pain , with multiple steroid shot to pelvic region but she has burning pain and I want to take her to Mayo clinic or other places if you know a good doctor? Thanks

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Hi @alexking44, welcome to Mayo Clinic Connect. You'll notice that I moved your post to an existing discussion where members are talking about pudendal neuralgia, like @beve @nickyfriskel @gtassithomas @rstollery @leigho55 @pita444help @menville and @dmburns54 and who may be able to offer physician recommendations for specialists in pudendal neuralgia. Simple click VIEW & REPLY to see the past posts.

Is your mom able to travel?

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@colleenyoung

Hi @alexking44, welcome to Mayo Clinic Connect. You'll notice that I moved your post to an existing discussion where members are talking about pudendal neuralgia, like @beve @nickyfriskel @gtassithomas @rstollery @leigho55 @pita444help @menville and @dmburns54 and who may be able to offer physician recommendations for specialists in pudendal neuralgia. Simple click VIEW & REPLY to see the past posts.

Is your mom able to travel?

Jump to this post

Hello I need a doctor for my mom and I wish you were not moving to another thread as no one has replied to me,

My mother can travel but we are from Canada and don't have health insurance and limited funds that's why I needed couple of recommended doctors as our funds are limited and we go right to the source

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I feel so bad reading your post. I posted under pudendal neuralgia a few years back and no one really responded. Who gave your mother the diagnosis of PN? did she have testing done to determine that? The Doctor who sent your mom for that nerve testing should have the name of a specialist to refer your mom to see. It is a very rare disease and very, very painful and something that will not go away. This has changed my life drastically and let me tell you Doctor's don't really seem to understand the psychological effects it can have on a person. How long has your mom had this pain? Do you have any idea how this happened? Are you sure this is not entrapment of the pudendal nerve? Has your mom been to a uro-gynecologist? Sorry for all the questions but just wondering what all you have done so far.

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I need few good doctors for pudendal neuralgia? Do you guys know any one?

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Does any one know couple of good doctors/surgeons for pudendal neuralgia?

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@alexking44

Does any one know couple of good doctors/surgeons for pudendal neuralgia?

Jump to this post

http://www.ObGyn.net
Has information about your painful condition.
They describe a surgical procedure.

Please get more than one opinion:
Gynecologist?
Family doctor ?
I wish you a complete healing.

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I got this terrible thing about 7 weeks ago.. omg ! Three special nerve blocks have not helped. Thankfully, from information some wonderful soul left about a brochure on Pud

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I am soon having a CT scan of the Pudendal nerve! So anxiously hoping for an ANSWER !!

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