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You can feel better!

MAC & Bronchiectasis | Last Active: Sep 28, 2018 | Replies (63)

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@macjane Sometimes we have to weigh the benefits over the risk. Is the pool a private outdoor pool? If so, that minimizes the bacterial load in it if it is being properly maintained. You can always have it tested by a lab for $150.00. Let me know if that is what you want to do and I will send you the lab info. I have posted links on this thread to connect you all to tests performed by NIH, who I absolutely trust; for you all to read and get the full scoop on what is found in swimming pool water. How infected are you now? Is the pool a possible place where you caught mac in the first place? I joined a gym and take a one hour cardio class (headed there in 5 mins.) I go three times a week. Getting out of the house and joining others helps a great deal with depression. Can you replace swimming for something else?

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Replies to "@macjane Sometimes we have to weigh the benefits over the risk. Is the pool a private..."

Getting out of house is so difficult but I am bound and determined to try to fight this. I think getting into hospital exercise class to get back breathing is something I am going to try. Heat as you know is horrific and warned about weather. My husband was called up in Desert Storm and I volunteered 80 hours a week in the most filthy Reserve Center. I seemed to get sarcoid while others got strange diseases. Wonder if MAC was overlooked. Told at one point, my problem was COPD because I smoked excessively. I never smoked. Learned I had MAC two years ago but got so intensively sick after horrendous bout of "flu" this past January. Also I had Achalasia and was again tested 2 weeks ago for this. Told to take Pepcid but doubled over in pain and severe headache. I am very "allergic" to many meds and got so violently ill to typical meds given for MAC. One pool is private and checked but can you send tests by NIH. Doctors tell me to exercise in walking in pools at Life Time for winter pool? I have been so week physically but I want to fight this. Does anyone ever have "flu" symptoms they have been able to fight? Going in pool(indoor) with lots of kids may be problem???? Told this is way for me to actually stand up as trying to walk can be so difficult - in pool water floatation was only done twice. This is done in winter. Does getting on bike for short ride down block make sense? Is there doctor in Ann Arbor area who works with Mayo?

@macjane I have flu symptoms periodically. That’s one of the reasons I went to the doctor in 2014. I felt like I had the flu 24/7 and was exhausted. It doesn’t seem to matter whether I am on the Big 3 or not. The flu symptoms persist along with periodic night sweats. I went through the change of life stuff almost twenty years ago. The exhaustion is overwhelming. I try most days to keep putting one foot in front of the other. My husband has sarcoid and never smoked . I am going to ask his pulmonologist to check for MAC when he has another bronchoscopy. You take care!

@macjane, Hello.Since you are so sensitive to meds; are you at least trying the nebulized saline treatments?