HI @sjhedcon, I have been diagnosed with mild idopathic peripheral neuropathy in my feet. I've tried CBD salve and CBD gummies and neither have had any effect. Everything I've read indicates that every one responds differently. So, you may want to give it a try. I bought my "Nature's Love Organic TopicalReLeaf Salve" CBD salve from "www.natureslove.org" The gummies from "https://plusproductscbd.com" neither worked for me. I also tried DMSO cream and that also didn't work
James
CBD Salves and ointments come in many variations in strengths and bases, and I have found one that works almost immediately for the intense burning from toes to above my knees and my hands. However, it has little or no effect on deeper stabbing pains. I find that taking higher strength CBD oil taken sublingually helps a bit with pain, but does more to calm my response to the pain. If neither is helping or bothering you, I suggest that you do not scratch it off your list for use as the disease progresses.
John, Volunteer Mentor | @johnbishop | Aug 25, 2020
Hello @scool, Welcome to Mayo Clinic Connect. Thank you for the private message. I thought I would answer your message in the discussion you were trying to find. You mentioned you found Mayo Clinic Connect while searching for information on CBD oil and neuropathy. If you click the VIEW & REPLY button in this email notification you receive, it will take you to this post in the CBD oil for Neuropathy discussion where you can scroll through and meet other members who have shared their experience. You may also be interested in the following discussion where other members have shared their neuropathy story including what has helped them -- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
I also have been diagnosed with idiopathic small fiber peripheral neuropathy and have shared my story and what helps me in the discussion above. You mentioned being on the highest dosage of gabapentin allowed but you are still having excruciating pain. Your story is very similar to that of a lot of members here on Connect. Have you tried any other treatments or therapy to see if they might help?
I have severe neuropathic pain toes to knees and hands. I began on gabapentin, then my doctor tried tried several adjunctive medicines. Gabapentin, no matter the doses, did no more that make me tired. We tried Cymbalta in a similar manner, but I was have memory problems. I tried another medication that really reduced pain, but again side effects. After years of podiatrist, family doctor, neurologists and pain specialist, I found acceptable relief with Lyrica and a mild prescription pain reliever. Now, I have good days, bad days, good hours and bad ones, but I am tolerating the pain. I know that maximising Lyrica dosage or changing to an opioid pain reliever could give more relief and more side effects. My plantar fasciitis and neuropathy required many trials until I found what works best for me. Gabapentin seems to be the got-to first medication because of minimal side effects and low price, but it is not necessarily the best for you.
@kimgibson1
Hi,. You know, it appears that @sarah_leanne only posted that one time back in 2018. I'm not sure how you could contact that person, I am guessing you may not be able to. @colleenyoung or @johnbishop would know the answer to that. Good luck with tracking down this product. Best, Hank
@kimgibson1
Hi,. You know, it appears that @sarah_leanne only posted that one time back in 2018. I'm not sure how you could contact that person, I am guessing you may not be able to. @colleenyoung or @johnbishop would know the answer to that. Good luck with tracking down this product. Best, Hank
@kimgibson1 and @jesfactsmon -- The profile page for @sarah_leanne shows the member joined in 2018, made the one post and has not posted since. They are also not following any discussions and are not receiving any notifications. I suspect that they posted for personal gain and were trying to make money off of someone else's pain....but that's a personal observation.
I believe @artscaping is very knowledgeable on CBD products and safe ordering. I would recommend contacting a local compounding pharmacist who can help with what is safe and legal in your state.
I have been using CBD made here from cannabis and am told that it is much better than CBD made from hemp. This CBD contains about 5% THC, not enough to notice. Its relieves the pins/needles feeling in my feet.
I have been using CBD made here from cannabis and am told that it is much better than CBD made from hemp. This CBD contains about 5% THC, not enough to notice. Its relieves the pins/needles feeling in my feet.
I only use cannabis oil from reputable dispensaries authorized by my state to sell the product. This way I'm assured what the contents of the CBD oil contains and does not contain. Both CBD and THC compliment each other so having a little THC is a plus in my book. I've been a pot head since my youth and I no longer reach a point that I'm "high" from THC but the CBD is doing a fantastic job of helping me to control my back and leg pain. A documentary you should enjoy. https://www.amazon.com/CBD-Nation-Jennifer-Lanksbury/dp/B08H4GXH35
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HI @sjhedcon, I have been diagnosed with mild idopathic peripheral neuropathy in my feet. I've tried CBD salve and CBD gummies and neither have had any effect. Everything I've read indicates that every one responds differently. So, you may want to give it a try. I bought my "Nature's Love Organic TopicalReLeaf Salve" CBD salve from "www.natureslove.org" The gummies from "https://plusproductscbd.com" neither worked for me. I also tried DMSO cream and that also didn't work
James
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1 ReactionThanks for your info. Sorry you had no success. Has anything really helped?
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1 ReactionCBD Salves and ointments come in many variations in strengths and bases, and I have found one that works almost immediately for the intense burning from toes to above my knees and my hands. However, it has little or no effect on deeper stabbing pains. I find that taking higher strength CBD oil taken sublingually helps a bit with pain, but does more to calm my response to the pain. If neither is helping or bothering you, I suggest that you do not scratch it off your list for use as the disease progresses.
Hello @scool, Welcome to Mayo Clinic Connect. Thank you for the private message. I thought I would answer your message in the discussion you were trying to find. You mentioned you found Mayo Clinic Connect while searching for information on CBD oil and neuropathy. If you click the VIEW & REPLY button in this email notification you receive, it will take you to this post in the CBD oil for Neuropathy discussion where you can scroll through and meet other members who have shared their experience. You may also be interested in the following discussion where other members have shared their neuropathy story including what has helped them -- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
I also have been diagnosed with idiopathic small fiber peripheral neuropathy and have shared my story and what helps me in the discussion above. You mentioned being on the highest dosage of gabapentin allowed but you are still having excruciating pain. Your story is very similar to that of a lot of members here on Connect. Have you tried any other treatments or therapy to see if they might help?
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Like -
Helpful -
Hug
1 ReactionI have severe neuropathic pain toes to knees and hands. I began on gabapentin, then my doctor tried tried several adjunctive medicines. Gabapentin, no matter the doses, did no more that make me tired. We tried Cymbalta in a similar manner, but I was have memory problems. I tried another medication that really reduced pain, but again side effects. After years of podiatrist, family doctor, neurologists and pain specialist, I found acceptable relief with Lyrica and a mild prescription pain reliever. Now, I have good days, bad days, good hours and bad ones, but I am tolerating the pain. I know that maximising Lyrica dosage or changing to an opioid pain reliever could give more relief and more side effects. My plantar fasciitis and neuropathy required many trials until I found what works best for me. Gabapentin seems to be the got-to first medication because of minimal side effects and low price, but it is not necessarily the best for you.
Can you tell me how to reach this person and order?
@kimgibson1
Hi,. You know, it appears that @sarah_leanne only posted that one time back in 2018. I'm not sure how you could contact that person, I am guessing you may not be able to. @colleenyoung or @johnbishop would know the answer to that. Good luck with tracking down this product. Best, Hank
@kimgibson1 and @jesfactsmon -- The profile page for @sarah_leanne shows the member joined in 2018, made the one post and has not posted since. They are also not following any discussions and are not receiving any notifications. I suspect that they posted for personal gain and were trying to make money off of someone else's pain....but that's a personal observation.
I believe @artscaping is very knowledgeable on CBD products and safe ordering. I would recommend contacting a local compounding pharmacist who can help with what is safe and legal in your state.
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Like -
Helpful -
Hug
1 ReactionDo you have small fiber neuropathy?
I only use cannabis oil from reputable dispensaries authorized by my state to sell the product. This way I'm assured what the contents of the CBD oil contains and does not contain. Both CBD and THC compliment each other so having a little THC is a plus in my book. I've been a pot head since my youth and I no longer reach a point that I'm "high" from THC but the CBD is doing a fantastic job of helping me to control my back and leg pain. A documentary you should enjoy. https://www.amazon.com/CBD-Nation-Jennifer-Lanksbury/dp/B08H4GXH35