I am dealing with only 20% kidney functionality – not really the same issues as your illness. I am not sure when I will am going to have to start dialysis but I know it will have to at some point.
I am on pins and needles every time I have to see Dr ( now it will be nurse NEULOGY – will be seeing me approx every month. So nerve racking. I really would like more info per visit. This waiting is awful.