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Dysuria, burning urination

Posted by Karen Stromer @kastro, May 27, 2018

I have extreme burning when I urinate & am now approaching 2 yrs with no resolution! I really have no discomfort other than awful burn which happens when I urinate & is always confined internally. It usually takes some time for this burning sensation to subside. I have no itch, discharge, odor or bleeding. Urine cultures reveal no UTI or other infectious conditions & vaginal swab ruled out bacterial infection. I am postmenopausal, type 1 Diabetic with Heart Disease. Urology prescribed daily use of estrogen cream (Estrace), but it hasn’t helped much.
I urinate a lot because I’m on Diuretics, so I’m miserable and this condition has been going on way too long! Can anyone offer alternatives or suggestions? Is there another vaginal moisture supplement, cream, lubricant or homeopathic remedy?

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andilynn | @andilynn | May 31, 2018

Karen,
I found your letter very interesting because you mention that you’ve been drinking lemon water and green tea. I am 99% sure that those items caused my problem to begin with. I was drinking lemon water and green tea every day. They can both be bad for the lining of our bladders. I still drink the marshmallow root and leaf tea almost every night...just plain. I stay away from coffee and tea. Occasionally I’ll have a little chocolate (I avoided it while suffering because of the caffeine in it). Found that patting a little coconut oil around the entrance to the urethra a few times a day helped with burning. A little Replens on your finger patted around the sore entrance helps too, but don’t use the applicator or try to shove any up “there”. Hormone creams make me feel terrible, so I stay away from that. I started feeling better after a month or so. Just knowing I was working on it made me feel empowered. I would have gone to see a urologist, but I could tell I was feeling better, so I waited. After a couple months I knew the problem was healed. And if it comes back, I know what to do again and I would start my “treatment” at the first sign, so it wouldn’t get so bad.
Good luck and please keep me posted!
Andi

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andilynn | @andilynn | May 31, 2018
In reply to @andilynn "Kastro, I’m so sorry you have to deal with this - it is awful. I have..." + (show)
@andilynn

Kastro, I’m so sorry you have to deal with this - it is awful. I have had two flares of interstitial cystitis that cause terrible burning with urination, but no infection. Has any doctor checked you for that? Here’s what helped me. Sorry the list is so long!
1. At least two cups of marshmallow root and leaf tea (unsweetened) very day (I buy it online).
2. I bought size 0 empty vegetable capsules and filled them with 1/8 tsp. Baking soda and took them every night at bedtime with water for a couple weeks to help get the urine to be less acidic. This helped so much!
3. Oil of oregano gel caps - one every day. I got the Solaray ones online.
4. Lots of water all day long.
5. No sugar or flour.
6. No acidic foods. That includes anything even closely related to tomatoes, berries, pineapple, anything lemon. The only fruit I ate was apples. I think bananas are okay, I just don’t like them.
7. Absolutely no caffeine. That means no coffee or tea, even decaf. No green tea for sure. Herbal tea that’s caffeine free is ok.
8. A heating pad or hot water bottle felt good sometimes, other times it didn’t.
9. I didn’t eat much during this time because every food was suspect in my opinion. But, my bladder healed and I got well again.
No doctor helped me with this, I just read everything I could find and figured out what worked for me. I pray that this info will help you and someone else.
Take care,
Andi

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I took the tea two or three times a day, the oregano oil with breakfast and the baking soda with my nightly pills. I read that you can take that twice a day, but I only took it once. I guess it’s high in sodium, so it can’t be taken forever. I did it for about 8 days at first and then stopped for a few days. I still was uncomfortable, so I think I went back on it for another week. This was all last summer and my memory isn’t very good on that.

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