Connect
← Return to Dysuria, burning urination
Discussion
Comment receiving replies
Kastro, I’m so sorry you have to deal with this - it is awful. I have had two flares of interstitial cystitis that cause terrible burning with urination, but no infection. Has any doctor checked you for that? Here’s what helped me. Sorry the list is so long!
1. At least two cups of marshmallow root and leaf tea (unsweetened) very day (I buy it online).
2. I bought size 0 empty vegetable capsules and filled them with 1/8 tsp. Baking soda and took them every night at bedtime with water for a couple weeks to help get the urine to be less acidic. This helped so much!
3. Oil of oregano gel caps - one every day. I got the Solaray ones online.
4. Lots of water all day long.
5. No sugar or flour.
6. No acidic foods. That includes anything even closely related to tomatoes, berries, pineapple, anything lemon. The only fruit I ate was apples. I think bananas are okay, I just don’t like them.
7. Absolutely no caffeine. That means no coffee or tea, even decaf. No green tea for sure. Herbal tea that’s caffeine free is ok.
8. A heating pad or hot water bottle felt good sometimes, other times it didn’t.
9. I didn’t eat much during this time because every food was suspect in my opinion. But, my bladder healed and I got well again.
No doctor helped me with this, I just read everything I could find and figured out what worked for me. I pray that this info will help you and someone else.
Take care,
Andi
Replies to "Kastro, I’m so sorry you have to deal with this - it is awful. I have..."
I took the tea two or three times a day, the oregano oil with breakfast and the baking soda with my nightly pills. I read that you can take that twice a day, but I only took it once. I guess it’s high in sodium, so it can’t be taken forever. I did it for about 8 days at first and then stopped for a few days. I still was uncomfortable, so I think I went back on it for another week. This was all last summer and my memory isn’t very good on that.
Connect
Wow Andi, thanks so much for all your suggestions! I'm definitely willing to give your "remedies" a try! Did you take the marshmallow root, leaf tea, baking soda and oil of oregano together every day? I knew before that I should avoid acidic foods. This is tough as I'm on sodium restriction, so I use lemon in cooking and especially to flavor water. Guess I'll have to eliminate that for awhile. Also, replaced coffee with green tea.... whoops. I'll try caffeine free herbal tea now. How long did it take to feel some relief or until your bladder healed? I'm sure you didn't continue to take the marshmallow root, etc after you started feeling better. Have you been able to add the acidic foods & caffeine back in your diet?
In answer to your questions. Yes, my PCP did a vaginal swab to rule out infection and there was no UTI. I was referred to Urology where they prescribed Estrace cream, which I continue to apply every night. This isn't helping much. Urology wants to do a cystoscopy, but I'm trying your suggestions first. I do have chronic kidney disease, thanks to insulin dependent Diabetes for 48 years....
I'll be busy ordering this stuff from Amazon tonight! I really do appreciate you taking the time to respond and sharing your treatments! I'm anxious to give it all a try and will keep in touch to let you know how things are going!
Thanks again,
Karen