Hello. Yes, I have seen many cardiologists since the initial event in 2006. They are very dismissive with regard to myocarditis. Even at the Mayo Clinic. I was at Mayo for a complete cardio work-up in 2012. Recently went back to seek answers at Northwestern Medicine in Chicago and Rush. Both places act like my symptoms are a total mystery and my tests are negative except for exercise induced hypertension which is a new finding. This does not surprise me as I have been unable to build exercise tolerance since the event in 2006. That symptom alone seems consistent with chronic myocarditis. I was very disturbed to learn after my right heart cath last week that tissue could have been obtained to diagnose myocarditis. I did some research on the myocarditis foundation website and for the first time I think I may have found what might be the problem. Finding a knowledgable and competent doctor is essential and sadly, I have not had much luck in that area. With Myocarditis most cardiac tests are negative with the exception of non-specific EKG changes, which I have. Doctors need to listen to the patients symptoms and the history of when symptoms began but I have not found a doctor to do that yet. Myocarditis is not very common. That is probably why it is dismissed. Not sure. Although I would not wish this on anybody, I'm hoping someone can shed some light on this problem.

@maryd as a suggestion ha V you looked into turmeric it's good for inflammation?

Myocarditis can be caused by an autoimmune disease which are difficult to diagnose. I was finally diagnosed with sarcoidosis after developing both cardiac and pulmonary issues leading to a pacemaker and defibrillator. Nearly ten years later I was given a heart transplant at Mayo Phoenix. There isn't a quick fix for most of us ...unless you have an acute cardiac crisis. I spent more time than I care to remember in doctor's offices in the interim. But I am grateful for the great care from the vast majority of my doctors. What finally convinced my mayo doctor that I needed a heart were the results of my pulmonary-cardiac exercise test which showed that my muscle groups were only getting 30% of the needed oxygen. I went through the transplant testing immediately. That test is not routinely given.
I wish you the very best.

Thank you for your suggestion. I have read that tumeric is good for inflammation. I think I'm going to try it.

Hello estrada53. I'm sorry you have had to go thru so much. It sounds like you had wonderful doctors. How are you doing now? Do you still see doctors at the Mayo in Arizona? You mentioned receiving the cardio-pulmonary stress test. I had that test done a couple of weeks ago and I was told it was normal with the exception of exercise induced hypertension. I think when symptoms are more severe, doctors can identify the problem easier. When symptoms are milder and don't immediately fit into the box of a specific diagnosis, doctors seem to give up. I'll keep pursuing an answer. I'm sure there is a doctor out there that can help me. Thank you for sharing your story. I hope you continue to do well. Take Good Care

@maryd glad to hear that your open in trying it let me know what you think