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Small Fiber Neuropathy

Neuropathy | Last Active: 1 day ago | Replies (106)

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@bruces

Thank you so much for the information, I’ve been diagnosed with SFN in the last year. it has stopped my life. The onset has been very fast within 6 months from slight tingling in my hands and feet to total numb legs and arms. SFN seems to now be consuming my torso including bowel and bladder control. This may seem insignificant in comparison to the pain we’re all going through BUT I’m curious if other people are seeing hair loss. I was a very furry guy, with thick hair covering all of me. But within one month most all my body hair has fallen out. Have other people experienced this? And if you have has any one had it return at any point?

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Replies to "Thank you so much for the information, I’ve been diagnosed with SFN in the last year...."

Yes-

Along with my other symptoms of non- length dependent polyneuropathy -

The acute attacks plus chronic progressive damage symptoms for 50 years that started at age 13.

In my early 20’s my eyebrows thinned and the outer half disappeared - as decades progressed I lost all the hair on most of my legs -

Other areas thinned as well

Since diagnosis last year( IgG vs FGFR3 ) and being on Prednisone my eye brows have grown back and so has the hair on my legs.