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wjones159 (@wjones159)

Small Fiber Neuropathy

Neuropathy | Last Active: Sep 25, 2021 | Replies (82)

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@12061948

Thank you. I hope the punch biopsy finally shows something or the nutrients test.
I can’t even walk very far. And heat bothers me. My body seems to be trying to sweat when outside but it causes pain all over my body
Had the lip biopsy for Sjögren syndrome it was negative. The drs kept telling me it might be this auto immune disese.
Many ANA tests all good.
So guess we will see.
Im missing so much good times with my family and I use to be the organizer. But pain has stopped all that. So guess just take each day as it comes.
And pray.

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Replies to "Thank you. I hope the punch biopsy finally shows something or the nutrients test. I can’t..."

Have your doctors talked about IVIG? I have widespread neuropathy symptoms, no sweating well below my waist, positive for short fiber, long fiber, motor and autonomic nerves but negative for lip biopsy and other common inflammatory and autoimmune tests. Started IVIG last month and it resolved about 40% of my symptoms with one infusion. IVIG doesn't work for everyone, but there are studies to see who additionally can benefit from IVIG treatments.

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