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wjones159 (@wjones159)

Small Fiber Neuropathy

Neuropathy | Last Active: Sep 25, 2021 | Replies (82)

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@sita

I have and am on B12 self injections every other day, at my insistence, my B12 was 472 when I started, range is approximately 200-900. The US doesn't supplement at 472 usually, but Europe does. The injections help with energy, some neuropathy, some of the other neurological symptoms. I am so sorry for your pain and difficulties. It is hell having an invisible, undiagnosed disease. I send you prayers as well. I hope you get diagnosed and cured very soon!

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Replies to "I have and am on B12 self injections every other day, at my insistence, my B12..."

Thank you. I hope the punch biopsy finally shows something or the nutrients test.
I can’t even walk very far. And heat bothers me. My body seems to be trying to sweat when outside but it causes pain all over my body
Had the lip biopsy for Sjögren syndrome it was negative. The drs kept telling me it might be this auto immune disese.
Many ANA tests all good.
So guess we will see.
Im missing so much good times with my family and I use to be the organizer. But pain has stopped all that. So guess just take each day as it comes.
And pray.

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