Hi, Wish this site/discussion group was available in March 2017! My daughter was 19 had just started on birth control pills in January took a road trip home for spring break an 8 Hour Drive and on her return to college, her entire left leg had a blood clot from hip to ankle. She was admitted to the hospital for four days three days in ICU went to do a procedure and we were told she does not have an IVC. She is a runner 5’3 110 pounds and a tough time recovering. Her pain started in the lower back thinking she pulled a muscle when running, the swelling in her leg and the pain continue to get worse she went to the college walk in clinic and they sent her immediately to the emergency room. Long story short she went to hematologist, vascular doctor, and a specialist in Alabama we traveled far to have her looked at and he discouraged and did notRecommend an IVC rebuild. She was on Xarelto for two years and five months after she stopped taking she had her second blood clot. Her new hematologist ran mini test and it did come back and diagnosed with factor five Leiden so not only does she have a hereditary blood clot disorder she does not have an IVC. She was told she will need to be on blood thinners for life and when she decides to start a family will be high-risk and on Lovenox therapy before during and after. As of now we have been lucky and not too many complicated issues but always in the back of our mind. -Amy