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Interrupted ivc and deep vein thrombosis
Heart & Blood Health | Last Active: Jan 27 9:14pm | Replies (32)Comment receiving replies
My 14 year old grandson is in the hospital right now. He has a blood clot in his leg and has just been diagnosed with No Inferior Vena Cava. The plan is to surgically clear the clot tomorrow and put him on blood thinners and compression stockings. After that I do not know. I don't think our local doctors see much of this. I would like to find a center of excellence where doctors have seen many patients with no inferior vena cava. Does anyone know who and where such expertise exists? I see the recommendation for Dr. Murphy in Charlotte. I will contact him but is their some university center that has a focus on this? Please help.
Replies to "My 14 year old grandson is in the hospital right now. He has a blood clot..."
There are many of us out here that will put him in our Heart and Prayers!
Sundance(RB)
My son and I went to Children's Hospital of Boston, they were very helpful, one of the problems that we have locally - no one understands this anomaly and wants to operate before they know the condition. We have a local hematologist that we work with that works with Boston.
This has been a long journey and will be the rest of his life but having the right doctors will help and relive the stress of not knowing.
Best
Erin Spera, RN,MS,CPNP
Nurse Practitioner
Department of Surgery
Vascular Anomalies Center
Boston Children’s Hospital
The procedure to clear two blockages went well. (See diagram). A very large amount of clotted blood was removed in order to restore the flow. Thank you all for your concern and prayers and information. See the Hematologist today so we will ask about "factor five".
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I’m so sorry to hear this about your grandson. I do not know about any university’s having a specialized center. Dr. Erin Murphy and her husband Dr. Gregory Stanley might be able to recommend someone in your area? I can tell you there IS hope! Duke could not help my daughter but Dr. Murphy did. I wish your grandson luck with his surgery tomorrow. Compression and anti coagulants are first steps. But the stent surgery could be an option for a more long term solution. With Covid they might could do a virtual consultation? Wishing you the best!