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The CDC has dropped Cognitive Behavioral Therapy and Graded Exercise Therapy recommendations, and the New York State Department of Health is against them.

This is from the New York State Department of Health website:


"How is ME Treated?

Although cognitive behavior therapy (CBT) and graded exercise therapy (GET) were once recommended to treat patients with ME, these interventions assume that patients are just out of shape (deconditioned) and are based on studies that included patients with other fatiguing conditions. These recommendations have caused more harm than good for people with ME and have been eliminated from the Centers for Disease Control and Prevention (CDC) website."

I can't stress enough how extremely careful ME/CFS patients have to be with exercise. It's important to have a doctor who understands this. Yes, you want to be as active as possible without exceeding your energy envelope and worsening symptoms. ME/CFS patients have severe aerobic energy production issues. Contrary to the GET/CBT model, the symptoms of ME/CFS are not caused by deconditioning or a lack of exercise.

It's important to understand that pushing to exercise too much can turn mild ME/CFS patients into moderate or severe/bedbound patients.

Those still not convinced should read a recent letter from exercise experts at the Workwell Foundation and the University of the Pacific: http://www.workwellfoundation.org/wp-content/uploads/2018/05/MECFS-GET-Letter-to-Health-Care-Providers-v4-30-2.pdf

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Replies to "The CDC has dropped Cognitive Behavioral Therapy and Graded Exercise Therapy recommendations, and the New York..."

@weblog thank you for sharing this. My doctor really believes she's helping when she tells me I need aerobic exercise and counseling and I'm sure it's because so many well respected healthcare giants still recommend GET and CBT. She doesn't realize that what I hear her saying is 'think positive thoughts and walk it off'. Believe me, I wish I could.

Thank you for mentioning this. I wanted to mention the same. There are lots of good reasons to seek therapy while you go thru this and CBT is useful, but only to a degree. Because of the deep fatigue I wish there was more help with diet. I live alone and cannot be fulfilling nutritional requirements. What to do. How far can very expensive supplements go in relieving my lack? Feedback please.