Once you get your diagnosis apply for
Social security disability. It is Retroactive to I believe when your illness started or when you first file. I have had chronic fatigue and Fibromyalgia since I was 26. I am now 63 and dealing with terminal cancer. The fatigue has always been my biggest problem and I did have to quit working at the top of my career at the age of 38. I was devastated but could no longer work and didn’t know how I continued to work for that long since it was almost 20 years. At that time I used vitamin stimulants from the health food Store to deal with work until those no longer worked. It is a terrible disease that is not understood by most medical professionals. But it has been around for a long time and there are the specific criteria so you can get a diagnosis and apply for disability, my advice to you would be to get an attorney who specializes in getting Social Security disability. I actually had to move from Texas back to Pennsylvania in order to get my disability 20 years ago. No One ever told me about this as an option or even applying with my employer for disability which unfortunately I was not able to get. This this would help you tremendously as at least you are financially in a better position since you cannot work. It does relieve some stress but not all. I understand what You are going through I have been there many years on the couch or in bed for weeks at a time. I was also a single parent, and I worked for 20 years previously while sick, I have no idea how I did that. It felt impossible most of the time. I finally started doing abstract art in 2016 and that took away a lot of my fatigue because I was doing some thing that I loved and it made me forget having CFID. Hang in there I believe newer research is being done now finally.

I won't say getting diagnosed was fast, but it was made easy because my first CFS event was when I suddenly could feel my energy draining out of me & I literally fell to the living room floor & could not move for 2 days. This was before cell phones & I live alone. All I could do was lay there & cry. No one came by the check on me because I was super healthy & competed in field events, so I worked out twice a day for 2 hrs each every day. Not counting biking & walking miles a day. But that day my life suddenly changed. Sleep vanished, everything hurt, allyodinia showed up, but never in my life have I ever felt & been so helpless. When I was finally able to crawl to the bathroom, I drank from the tub faucet. Couldn't stand to reach the sink. I cleaned up, which made me weaker, crawl dragged to my bed & that's where I stayed for days. I learned to give a friend a key in case it happens again. He brought me a camelpak of ice & water & put fruit close by. Yrs later he still checks on me because I have what I call coma deep sleeps. Unpredictable. He said he shook me hard, yelled my name & I kept sleeping. I woke up a day later. Had to ask him what day it was. Drs don't have any idea why it happens. But trying to explain to my friend what CFS is like for me is impossible. Til he found me on the floor about a month later. He had to pick me up and put me in bed. I could barely lift my head. I have multiple auto immune issues. I had a triple bypass 10 yrs ago, but I went in with 2 lungs, came out struggling to breathe. COPD from the bypass I was told. I can't remember what it was like to do 30 mins of 410 lb leg presses. How quickly aide can be changed. Now I'm proud & happy to be able to walk half the apt parking lot. I've learned to be thankful for every small thing I can do each day & a friend that calls me every day. If I don't answer, he shows up. At least he has seen in action when a flare from something happens. He said once he never realized when I say I can't move, I really can't move. Having energy is precious. Being able to walk is too. We each can celebrate every tiny thing we can do no matter how small. We are warriors & my heart is with you all💜