← Return to Osteoporosis treatment or strontium citrate?

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@imatine

I am 42 years old and based on a recent dexa scan I got severly low density in my spine and moderate one in my hips. I am a cancer survivor. Had a nasopharyngeal carcinoma, treated through radiotherapy. I went to a rheumatologist who prescribed Prolia and reading about all the side effects, I am traumatised especially that my Jaws received high dose of radio and because I suffer from severe dryness in my mouth. What kind of treatment suits my case and whose specialty is this? An endocrinologist, rehumatilogis ? I can't make a decision on how to go about it. Thanks for any advice here in the community and at Mayo

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Replies to "I am 42 years old and based on a recent dexa scan I got severly low..."

@imitine Welcome to connect we arent Drs. but can help with what we have knowledge about . A rheumatologist has knowledge about the bones and muscles. A endocrinologist is knowledgeable about your hormones. Not saying they don,t cross over . I would say to talk to your Dr about your concerns about having Ca. and ask her which one is best for you . Does this help any? Others here will chime in of there information .

My jaws are my weakest spot. I cannot speak about Prolia, but I think you might agree with some that I say. It's not easy to take a drug with so many side effects after you've been really ill. You start to question ingredients. I tried Fosamax and had jaw problems from the beginning and had to stop taking it. I did nothing for a while, and of course, my osteoporosis got worse. My overalll DEXA score was -5.7. I was starting to fracture. I started eating to get calcium, magnesium, and I supplemented to get Vitamins D3 and K2 (mk4 mk7). I added collagen peptides. I tried taking strontium, but did not get help. And then I started taking boron. I took a tiny dose of boron for about a year. ALL of my pain from osteoarthritis, rheumatoid arthritis and fibbromyalgia went away. Then I upped the dose to 18 - 21 mg per day and the pain I used to get from my "dowager's hump" disappeared. Boron is the key to stopping osteoporosis. RBG was famous for having osteoporosis and she went everywhere with her prunes as prunes are high in boron. Though I have heard you cannot get enough boron from prunes and live to tell the tale. I'm going to wait to see if this dose is effective. If I need to go higher, I want to understand the relationship of estrogen increase because of taking more boron. I had an appointment to get Prolia about two years ago. I wanted to discuss the side effects with the doctor. She said I was wasting her time and she left the room. I told her about the jaw problems with Fosamax and she admitted I would have the same problems. I did some research including talking to women who had suffered side effects from Prolia. I just couldn't take it. After I decided not to take it, I learned that "allegedly" Prolia traps old bone and won't let it leave the area, so it piles up and makes your bones look thicker. This gets labeled as bone growth. But if you doctor is being straight with you, s/he will admit that if you stop using Prolia, all that "bone growth"will be gone as soon as you stop using Prolia. You will finally be able to pee away the dead bone. I'm sure that is oversimplified, but that is the way I learned about it. You have to do what you think is best. I gav\e up eating sugar almost six years ago, and that is also worth doing if you have osteoporosis. Going off sugar was the smartest thing I ever did for my body. As soon as my doctor clears me to get another DEXA Scan, I will let you know if I improved. (I don't have an immune system and she doesn't want me to take a risk.). I am no longer fracturing - so there is that (knock on wood). Some of the ideas I got were from membership in another group, and then I did research on my own to see if there was any truth to what they were saying. A functional doctor is what you are looking for, but they are not covered by most insurances and they can be expensive. There is a functional doctor near me that does take my insurance - but she requires $1,500 up front unit your insurance kicks in and I cannot afford that. You probably will not find a medical doctor (except for a functional doctor) who will discuss strontium or boron. They may not even know what they are! I encourage you to do as much research as you can. That's what I've been doing and I know I'm on the right track for my body now.
I wish us all the best luck. This disease is a stinker!

Hello Imatine. I am Sunnyflower. Endocrinologists usually manage osteoporosis. Since you've been under the care of an Oncologist, the two specialists can coordinate your care. I wish you all the best in every way.
Many blessings and warmest wishes, Sunnyflower 🤗🌹