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kristivila (@kristivila)

TBI and brain aneurysms

Traumatic Brain Injury (TBI) | Last Active: Aug 6, 2018 | Replies (33)

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@kristivila I am so sorry to hear you are dealing with an invisible illness! You are not alone in your struggles to find understanding and validation. I have a vascular disease, small brain aneurysms and avm's that are monitored. I have recently reconnected with some high school friends, many know I have a disease but they have no idea how it affects my daily life, nor would they understand no matter how much I explained. Don't give up! We are here! What gives you comfort? Do you have an activity or something special that you enjoy? I read a lot as an escape. More awareness needs to be made in coping with invisible illness. I have found this facebook page/blog so helpful, I hope you can find some comfort in it as I did. Our illness may not be the same, but when dealing with invisible illness we sure can relate to one another. Here is a link to PajamaDaze: https://www.pajamadaze.com or https://www.facebook.com/PajamaDaze/

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Replies to "@kristivila I am so sorry to hear you are dealing with an invisible illness! You are..."

Hi, I have a brain aneurism and I get an MRI and CT scan every 6 months. My mom died a few years ago from a massive stroke.

Hi @monicajones, how long ago did you have your aneurysm?

It was over 20 years ago. I have never felt like me since.

Why are they waiting to remove it?

Because it’s small

I was diagnosed about 5 years ago. They do a CT scan and MRI every 6 months. It in my carotid artery in my brain.

Seems to me that it should be removed. Is there a chance of it rupturing?