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Adults On The Autism Spectrum

Autism (ASD) | Last Active: Jun 19 1:34pm | Replies (1156)

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@mamacita

Hello, @Chris Trout, @gingerw ....It seems like every time I turn around it's Arthritis pain in all my joints, pain from discs that have seen better days, or allergy issues. I'm on Lyrica, Aspirin, Turmeric, Flaxseed Oil Capsules, Magnesium tablets, Garlic and Parsley capsules, Xyzal, Viibrid, and soon to be Deplin. It will take a week to get here.

Viibrid is for Depression. Deplin is to help my body and brain function without the enzyme necessary to process Dopamine and Seratonin. Genetic testing by a reputable company was done to see which medicines would work the best for me. And which ones would not work very well at all . The test results were an answer to prayer.

All these years I was enduring side effects from medicines that did little to alleve my many symptoms of "high functioning" depression. Depression is not just being sad, lonely, or in pain. It is that, but there is so much more to it. In my case, I have always been lacking that enzyme that is important to the body's ability to manufacture the "happiness" hormones. Cymbalta worked, to an extent, for years. But I always had what some refer to as "breakthrough" depression.

Fortunately, I had a determined investigator in my corner who listened closely to me. I even shared with her that I was on the Spectrum. But, that I didn't feel like that was the whole story. I had been prescribed Buspar previously, for anxiety. That was working really well, with no apparent side effects. With off the charts hearing, superior observational skills, and extreme sensitivity, not treating the anxiety was simply not an option.

Cymbalta was raising my blood pressure, so I was put on Adelaide . I stop breathing and get very close to not breathing, 58 times. I will have another sleep study done to see if I have improved enough to where I can use the mouth piece instead of a C Pap machine. My old one finally gave up the ghost .

I'm not perfect about eating exactly what I should. I had some things recently that undoubtedly put me in this situation with my throat and coughing. Allergic to dairy, supposed to be on a gluten free diet, allergic to fish, waternelon, tomatoes, cantaloupe. The list goes on and on.

As one of my medical team so aptly put it, I am a "train wreck."

But I'm my tribe's train wreck. @colleenyoung, @sirgalahad, and all of you smart, funny, sweet, lovely people, you put up with me, along with all my others "irl." Perhaps we can all learn a lesson here. When the Allergist tells you not to eat certain food items because you are severely allergic to them, you had better pay attention.

Because if you eat enough of the foods that bother you , you might end up in the emergency room.

Thank you for allowing me to vent and explain my "train wreck" of a situation.

I will check in with you guys in the various groups where we meet. I promise I won't be so long winded next time. And no more forbidden foods that trigger an anaphylactic response. It's a deal.

Love and light,

Mamacita Jane

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Replies to "Hello, @Chris Trout, @gingerw ....It seems like every time I turn around it's Arthritis pain in..."

@mamacita

As I read about all of the medications you have tried I see that you have worked hard as your own patient advocate! I really admire that. I'm sorry to hear of your "train wreck" days and I hope that they will end as you follow your dietary restrictions. You've given us a good reminder to pay attention to those foods that we know we should avoid!

@mamacita Wow Wow you had a lot of meds. I know I cant eat the nightshade plants as it triggers my allergy,s and fibromyalgia. I'm to be on gluten free but am trying to not eat bread but I love it the gluten free bread is so expensive and taste isn't the greatest. Havent found a recipe for one or Id try baking myself. We all have our train wrecks don't we and learn from each other which is so great on this forum Take care of yourself. I'm going to try to go back on Lyrica the other 2 didn't help at all and I thought I was losing my mind on Cymbalta.

wow don't the quacks read the meds contraindications crap crap crap