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Adults On The Autism Spectrum

Autism (ASD) | Last Active: Jun 19 1:34pm | Replies (1156)

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@mamacita

Autism and I go way back. As far as I can remember. And I can remember as far back as my infancy. Can any of you Auties remember before you were a year old? I would love to have you tell us your story.
Steps. So many steps. And Neurotypical people wonder why we Auties burn out, seem antisocial, and have melt downs. My youngest daughter, who just had a baby a month ago, was explaining all she had to do in order to prepare for the baby. The list went on and on. I was tired before she finished. "So many steps!"

I couldn't help but think about how ironic that statement was. She was explaining my life, everyday, with that statement. And she is not Autistic. She is ADHD, and does have a few traits from her beloved Mama. That is to be expected, of course. Everything I do, every day of my life has so many steps. It is exhausting.

Learning how to present as Neurotypical in this society is exhausting to us Auties. We hate small talk yet we must learn a bit about it or we are perceived rude and uncaring everywhere we go. That's just the way life is.

Some situations can be life threatening, if not approached properly. Witness the shootings of persons who could not follow a police officer's directions. Delays in language or auditory processing, can appear to be defiance and endangerment to an untrained law enforcer's eye. The end result can be deadly.

My challenge today is to simply show up at an ER and present my shingles, which advanced precariously close to my eyeball during the night. The eyelid itself is red, my cornea is scratchy, and it looks a bit red in certain areas. I want to be proactive and go ahead and go before it gets any worse. That's what the nurse practitioner told me to do. Go at the first sign of irritation on the cornea.

Going to the emergency room is like going to the police station to me. I feel intimidated. I feel like they have all the power over me. And if I make one mistake they will throw the book at me. I feel judged. But I have learned so much from all of you. I have been encouraged to be strong, and to do self care. I have been told that I am good enough, that I am worthy, that there is a greater purpose going on here and I am part of it.

I feel loved and supported. I feel like I have friends and family here. It gives me hope that I can slay the dragons in my path. You all are amazing. And if I can ever do anything for you, I'm your girl. Can I ask you for responses about this dissertation? Do any of you have major concerns about going to the ER? Please let me know.

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Replies to "Autism and I go way back. As far as I can remember. And I can remember..."

@mamacita I hope this finds you feeling better and that your trip to the ER was uneventful. Going to an ER without any problem can be exasperating and very tension-filled. When you feel less than good and having trouble seeing or concentrating it can just be downright scary. Good for you for expressing your concerns, as it seems to help "take the wind out of their sails" and lessens the powerful grip those feelings can bring to you.

Being an autie in a neurotypical world, for me, means putting on a mask for a while, playing like you "belong", acting as if. The 12-step phrase of fake-it-til-you-make-it comes to mind. It is exhausting, and an outing is followed, for me anyway, by a period of quiet and rest. Recharging my batteries that get seriously depleted with a lot of interaction is critical. You asked if we recall infancy. Yes, I recall back to about 1.5 yrs old, maybe a bit younger. My dad corroborated my memories. I could describe the house we lived in, and another house where there is a vivid memory. The family was preparing to leave for an outing, but I refused to go, saying there was a fire in the house. My mother was real ticked. My dad found an unattended cigarette she had left, that probably would have caused a big problem. I learned to trust my instincts then.

Please take care, our cyber-friend. We care about you. Gentle hugs as we go,
Ginger

bear hugs mamacita i lubs you and so so sorries that you have to acquire shingles ontop of fibromyalgia and its so bloody unfair as well as being a felloww autistic . lubs and cuddles you dear mamacita and lubs