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Raynaud's Syndrome: Anyone want to talk about Raynaud’s?
Autoimmune Diseases | Last Active: Feb 4 3:28pm | Replies (296)Comment receiving replies
I have had Reynard for years..until i.mentioned it to my arthritis doctor nothing was ever done about it. I also have RA which they say is associated with reynauds. I read up.on it all the time....Air conditioning when I'm out in a store brings it on to the point that I have to bring a heavy sweater and or leave the store. Finally I found that if you keep your core ( which is your chest) warm in AC it helps immensely. I take nothing to control it. My extremities turn pure white and painful. I have fallen thru the cracks with my Arthritis doctor.In today's world you have to be in charge of your own health and the doctor gets paid for your time.in doing so...Something wrong with this picture.
Replies to "I have had Reynard for years..until i.mentioned it to my arthritis doctor nothing was ever done..."
Alot of people here in Calif at our building Sr apt. Where gloves and sweat suits with Reyneards?
Thanks Sandycam! I must try to remember to keep my core warm. That is advice I had not heard. I just went to the MCV clinic two days ago for blood work. I am required to go every 3 months. They are treating me for the Lupus, but concerning the Reynaurds, they basically tell me good luck!
Dear Proud...on your next visit to see your doctor, ask him ( she ) about keeping your core warm...It does work..just today I went into an air conditioned store and took my sweater with me...
Thanks Sandi, I will. Best to you!
All the best to you....keep in touch
Wow! A Raynaud's Group! I've had it since 1976 and only officially confirmed it this month by a new podiatrist. I typically have 2 to 6 purple toes, need to go to extremes to keep myself warm (I also have Parkinson's Disease which comes with extreme sensitivity to cold temps), but in particular, have difficulty keeping my feet warm. I have Osteoarthritis, a seizure condition,. and a host of other difficulties (oh, and peripheral neuropathy), but the worst problem is my feet! They not only get super-cold, but super painful so that walking becomes limping, or worse, just getting off my feet and into bed where I have a heated bed-warmer.
You are right about falling thru the cracks. I think all of us who have multiple disorders and multiple symptoms are just a quandary, a curiosity, to doctors. It seems like they look at ONE thing, and one, only. The rest of our complaints are dismissed and we're treated like nut cases. I was actually referred to as crazy while hospitalized. Actually, I'd say that in fact I was surrounded by uneducated pseudo-professionals, in particular, the RNs, but the doctors went right along with them!!
Stay warm! Over-dress in layers. Two pairs of socks, unless you have strong neuropathy and the burning is a greater prob than the freezing! Hoooeee....we are a mess and yes, we're in charge. KIf only doctors were mandated to cross-educate to a greater extent...or something. But for now, we only have eachother.
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@sandicam Thank you for responding. I am pretty sure my daughter has RA also. She has complained about aches and pains for years; especially in her knees.