← Return to Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

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@kanaazpereira

@dash99999 @rpswanson1 @melissa23 have also mentioned Raynaud's Syndrome, and I hope they will join this discussion and share their insights. @kariulrich, I recall you mentioning Raynaud's and developing chilblains a while ago?

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Replies to "@dash99999 @rpswanson1 @melissa23 have also mentioned Raynaud's Syndrome, and I hope they will join this discussion..."

What is chilblains. Omg do I have to watch my daughter for that also?? She won't come on here because she won't admit to her illness.

My understanding is it's when your skin gets cold but if you live in Texas I don't think you have to worry. I could be wrong but that's my understanding

I don't find that to be true...in my case anyway..When I am in Florida and go to an air conditioned store I have a flair up. Resolved..wear a sweater or a jacket and keep the core of your body warm..

I live in Florida. One would think that it's the ideal climate for raynauds. But, it isn't. Going in an out of air conditioned building and cars are problematic. I keep gloves everywhere and wear long sleeve sweaters no matter what the temperature is. Heat locker gloves from Walgreens were wonderful during the winter. Also, moisturizing my hands seems to help. Apply a dab of Coconut oil first then layer it with lotion. Good luck!

@lioness My daughter's hands, feet and knees turn white to purple every day no matter the weather. For some odd reason; every day at precisely 4:00 p.m. her ears turn bright red and burn horribly; also, her chest and throat break out in big red welts. Along with that, her arms look like scalding water had been poured on her. We have lots of photos of it. It is so bizaar.

@lioness I think that for the most part, cold does bring on the symptoms for most people with Raynaud's. I think my daughter has an exceptionally severe case of it though.

Teri This is strange I know you,ve had her to her Dr.I would run the gamet first I'd take her to endocrinologist the cardiologist keep me posted. Good luck also a rheumatologist find the best ones for your daughter

I had come down with similar symptoms including other things they said I had. I found out one issue was an allergic reaction to a prescription they gave me which was bactrin which is a statin antibiotic. I discovered this when I stopped it as I was taking 3 times a week to prevent lung infections. None of the specialists caught it and I showed and told them all about the inflammation, hives, peeling sking...... They have a tendency to blame skin issues on autoimmune cases. They all have similar symptoms. It is a difficult field for them and not enough research is done to really rule out reactions to the prescriptions they give you for additional things that come up as you go through various reactions to chemicals, food, vitamins and prescriptions. I had to document and really watch effects of everything I ate or took, including supplements. I'm much better now as I actually started discontinuing prescriptions such as plaquenil and gaberpentin (sp) as they are band aids for pain and tylenol works when I do have pain issues. Recently I discontinued Cellcept and so far (after several months no negative effect (I slowly reduced to zero). I did tell my doctors what I was going to do as I can always start them up again and I was willing to go through the discomfort (if I had any). I blame my calcinosis on the medications and I think it was plaquinel or the immune suppressant. That has not gone away but it isn't creating new sites anymore. If anyone has calcinosis and they are taking any of these medications and it showed up after they were on them for a month or ??? let me know. Nobody does research on this and I had to experiment before everything got really bad. My friends can't believe how good I'm looking, hair growing back, gaining weight and a jump in my step. I feel very fortunate and this may not work for you or others but I'd sure like to know if anyone has gotten the calcification under their skin (hard lumps) or even ossification where calcium is growing on the skeleton.

Hi, I'm Cindy and would like to join this discussion as I have Raynaud's and have for years. Two weeks ago I developed chilblains. Mine have become very painful and today I returned to Mayo. My dermatologist prescribed Clobetasol Propionate Cream, USP, 0.05% and white vinegar and water solution applied with gauze for 10 minutes 2 x a day. Just started with the vinegar soaks this afternoon. I never thought my Raynaud's was very severe even while living in Richmond, VA. However, these chilblains are really painful. I have a burning sensation
with huge blisters filled with fluid. Flip flops have become my best friend since the thought of slipping on closed toe shoes makes me cringe. Living in Florida, it puzzles me as to why I've developed these because my feet are very rarely cold. My dermatologist ordered blood work to see if any other autoimmune diseases were present. Not fun