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DiscussionRaynaud's Syndrome: Anyone want to talk about Raynaud’s?
Autoimmune Diseases | Last Active: 17 hours ago | Replies (239)Comment receiving replies
Replies to "My daughter was diagnosed when she was about 15. As she grew older she tried to..."
My beautiful daughter and I mean mean beautiful, has blotches of changing color. She is naturally dark in color. A tan color. But, she has a wonderful husband and 2 children grown
She worked hard and refuses to believe she had all these horrible things. I love her so much.
So sorry for your daughter and you we all have our crosses to bear I know it's hard physically but be strong as I know you are .
@lioness Thank you.
From what you,be said has she seen a endocrinologist? He will look at her hormones. To @windwalker
@lioness Thank you for the tip. I will mention it to my daughter. -Terri
HI WNDWALKER, IT IS GREAT MEETING ALL YOU GUYS. I ALSO HAVE RAYNAUD'S ALONG WITH MAC, INTERSTITIAL PULMONARY ,SJOGREN'S , PHIEBITIS, CAP, COLON CANCER. I HAVE LEARNED MORE IN DETAILS ABOUT ALL OF MY CONDITIONS FROM ALL OF YOU THE DOCTORS ONLY GIVE A LIMITED BRIEFING AND AFEW RESEARCH PAPERS. BUT EACH DISEASE TAKES ON SYMPTOM CHANGES AS TIME GOES ON.. EACH TIMES TONS OF TEST ARE NEEDED TO CONFIRM ANEW DISEASE HAS NOT MOVED IN , IN JOIN THE REST OF THIS CLAN, WHO IS ALL LIVING IN MY BODY .IT'S NOT AS SCARY SINCE I HAVE BEEN SPENDING TIME WITH YOU GUYS. I'M 68YRS. OLD AND YOU ARE MAKING MY DAYS A LOT LESS STRESSFUL. THANK YOU, FROM CAJUN LAND, TONI ANN
Welcome toni68 Its good you found this group there,s alot of information here I have fibromyalgia,fracture back,fr.ankle other back problems. I am a retired nurse and write about some information that I know , I also have sjogrens..
@toni68 Hi Toni Ann. Great hearing from you. Safety in numbers! I too feel a lot better with the comradery on Connect. How are you faring with Rayaud's and MAC?
@toni68 Good Lord Toni, you have had a lot on your plate healthwise! I didn't mean to minimize your other issues by asking only about the mac and raynauds. Most importantly, have you got your cancer gone? Are you doing ok now?
@oregongirl Hello. My daughter has Raynaud's also. Her's is pretty bad. She changes colors on a daily basis and at times looks like scoulding water has been poured all over her body. She is very self concious about it and has spent too many hours in the tanning bed trying to mask it. Her body seems to lack a 'thermo-stat'. By that, I mean that she feels like she is burning up no matter what time of the year it may be. Does your daughter have that symptom as well?