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Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Autoimmune Diseases | Last Active: Dec 25, 2023 | Replies (225)
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@colleenyoung

Thanks for getting this discussion group dedicated to Raynaud's Syndrome started, @windwalker.

I'd like to invite @thomasesmom @lila25 @lauren123 @bswtwa @poppy73 @denia @olga1dubrovsky2_babies and @kdubois to join the group. Why not start by introducing yourself. Do you have primary or secondary Raynaud's? How do you help prevent an attack? What do you do to manage it?

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Replies to "Thanks for getting this discussion group dedicated to Raynaud's Syndrome started, @windwalker. I'd like to invite..."
lauren123 | @lauren123 | May 5, 2018

I didn't know there is primary or secondary Raynaud's. I am on a sharp learning curve here. I am 69 and my mother also was told she had this disease. My symptoms were diagnosed years ago by our primary physician, Both of us experienced cold chills and very wrinkled hands. I'm very interested to hear more since I think have other related issues. Thank you for starting this discussion.

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Terri Martin, Volunteer Mentor | @windwalker | May 7, 2018

@lauren123 Hi Lauren. Yes, there are two kinds of Raynaud's. There is PRIMARY which is only Raynaud's, which is a circulatory disorder; and then there is SECONDARY which means that there is another disease(s) that commonly co-exist with Raynaud's. The other common diseases than can accompany Raynaud's are Lupus and Scleroderma. These are autoimmune diseases and can also include RA (arthritis) and Sjogren's Syndrome. Others may jump in and speak of their experiences with SECONDARY Raynaud's, but you can Google lots of info also.

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janeamartin | @janeamartin | Apr 22, 2022

I’ve been in this party for over 40 years and it sucks

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