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seizure watch-monitors

Epilepsy & Seizures | Last Active: Oct 23, 2018 | Replies (18)

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@colleenyoung

Welcome to Connect, @kerivb .
If you're comfortable sharing, can you tell us a bit more how the monitor works and helps you and your daughter?

What type of seizures does your daughter have? You said the monitor alerts you about 30 seconds into the start of the seizure. When you get the alert, what do you do? Does having the monitor give your daughter comfort knowing that someone is "there"?

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Replies to "Welcome to Connect, @kerivb . If you're comfortable sharing, can you tell us a bit more..."

My daughter has Tonic Clonic, she hasn’t had one since we got the watch but she shook her arm like she was having one and it took 30 secs to text me & 30 secs later to call me

And a lot can happen in a minute... had a grand mal and hit the casing on the stairway, needed stiches and bit my tongue really bad...and i didn’t remember anything.

The smart-monitor watch goes by movement. My daughter has absence, Myoclonic jerk & tonic clonic seizures. My daughter has not had a seizure since getting the watch. But we did a make shift shaking as if she was having a seizure....after 30 secs it sent a text message with location & after another 30 secs sent a phone call to my phone.... most seizure watches act the same, I know a few go by heart rate as well....this one also allows you to cancel the alarm and tells the receiver it was false alarm...bad thing is you can only have 1 person to call but like 5 ppl to text and you need your smart phone within at least 15 feet