← Return to Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

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@johnbishop

@paddington asked me to post the following additional information and links that helped him since he is not yet able to post links...

I found that the more I learned about GCA, the more I felt capable of handling whatever issues rose during my treatment.

Here are the links:

This is the most complete discussion of GCA that I have found. It is a 12-page peer-reviewed article that appeared in Eye and Brain 2019:11. It is well documented, written by a group of doctors in Texas.
-- https://www.dovepress.com/giant-cell-arteritis-early-diagnosis-is-key-peer-reviewed-article-EB

Nervous about having the diagnostic biopsies? Want to know what to expect?
Query ""temporal artery biopsies" on YouTube

Actemra is the first prescription medicine approved by the FDA to treat GCA. It is very expensive but financial assistance is available. I have been told I am likely to be on Prednisone AND Actemra for 2 years, the usual length of a GCA treatment plan. Relapses are not an unusual response to a lower dosage of Prednisone during the tapering off process This can greatly extend the length of a GCA treatment plan.
-- https://www.actemra.com/gca.html

Frequent Lab Tests will be required throughout treatment for GCA. This website has a good explanation of those tests – and the ones required/recommended BEFORE you begin your treatment plan.
-- https://labtestsonline.org/conditions/vasculitis

According to the NIH, no definitive diagnostic tests exist for Steroid Myopathy.
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3784879/?report=printable

And now we have Coronavirus. Taking Prednisone lowers our resistance to infections. We have been given tremendous motivation to avoid crowds and stay at home because the coronavirus is known to be especially fatal to the elderly. A true double whammy.

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Replies to "@paddington asked me to post the following additional information and links that helped him since he..."

Thank you so much for this valuable information. I have been on 5 mg of prednisone for a long time . Not a lot of information out there about this . So thanks again.