I too appreciate everyone's sharing of experiences. Diagnosed with GCA and Polymyalgia July 2018 and down to 5mg tomorrow, from 60mg. Yippee!! Only pain that has returned (at 7 mg) is the jaw, which is odd, because that had gone away immediately. Nothing compared to what the overall pain was. Hope to eventually get off totally, at some point, but I'm comfortable with what I'm doing. I just recently read a book on GCA written by an English woman, not a doctor. I think it was good I read it now and not earlier.