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← Return to Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)
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Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)
Polymyalgia Rheumatica (PMR) | Last Active: Jul 7 8:52am | Replies (353)Comment receiving replies
I began this journey with an ESR of 51 taken by my NEW primary Dr. He put me on 10 mgs of Prednisone. After some research online I panicked and realized that with all my symptoms including the problems with my eyes, that this condition could be serious. I have a rheumatologist that I go to for my hands, made an appt. She immediately made an appt for a biopsy for me and gave me a prescription for 50 mgs of Prednisone that I should take the minute the biopsy was over. Two days later she called with results positive for GCA. Latest 11/5 ESR and CRP are about the same as my first visit with her although they dropped on 9/24. I was away and need to make appt. for blood work soon. Also looking for another new primary! Hope this makes sense...all caused by a second shingles vaccination.
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What were the problems with your eyes? I have no or very little pain in my temples, but my vision seems to be getting worse almost daily. It is blurry, and sometimes I see double. I can barely see street signs and read my computer screen. I have neck pain but not too many headaches. Could this be GCA? I have had PMR for almost a year now, and am down to 5mg of Prednisone a day.
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Blood work scheduled for 12/3... Meanwhile I am miserable with both GCA symptoms and Prednisone side effects. Headache, temple pain, jaw pain, teeth sensitivity, fatigue, blurred vision, irritability, trouble thinking, speaking and walking. Trouble sleeping, thin skin, bruise easily and bleed profusely..fun, fun! plus my tongue feels like it has wiped a dirty floor. Down to 30 mgs from 50 mgs (8/26/19).