← Return to Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

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@tinkerbell

@jhinia - Right now the important thing is to get to 20 mg. You should be able to sleep once you get there at least that is what happened to me. The one recommendation I read early on was to never go down more than 10% at a time after 20. Maybe I should have gone to 18 and it would have worked. I was so upset about the problems at 20 mg to 17.5 that I was scared to do anything else but the 1 mg. It worked and I eventually got off without any problems. Always remember slow is good.

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@jhinia

Quick question. When you were tapering and went from 20 mg to 17.5 with issues, were you getting Actemra injections? My husband was down to 20 mg and last week his doctor wanted to go to 15. We pushed back and got her to agree to 17.5. He’s done this for a day and so far so good. She claims the Actemra helps reduce Prednisone more quickly. Fingers crossed.