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Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)
Polymyalgia Rheumatica (PMR) | Last Active: Apr 1 8:19pm | Replies (342)Comment receiving replies
I was not too happy about the 2nd biopsy. They did it one week after the first one and the thought of going through that again was pretty depressing. The first one took 7 hours from check in to check out. Even though it is done under local and sedation they prep you like you are going to be under general anesthesia. At least that is how they do it here.
@tinkerbell your dosing info and others I have read have me concerned about getting that fine tuned. Right now I'm just happy to be at 50mg instead of 60mg and I am looking forward to going to 40mg this Friday. I can't imagine being under 20mg and adjusting it one mg at a time. I guess we do what we have to do.
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@jhinia - Right now the important thing is to get to 20 mg. You should be able to sleep once you get there at least that is what happened to me. The one recommendation I read early on was to never go down more than 10% at a time after 20. Maybe I should have gone to 18 and it would have worked. I was so upset about the problems at 20 mg to 17.5 that I was scared to do anything else but the 1 mg. It worked and I eventually got off without any problems. Always remember slow is good.