← Return to Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

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@jhinia

This is my first post so I apologize if I am in completely the wrong place or if my question has been answered a million times before. I searched for a Giant Cell Arteritis group and I searched each of the 14 pages in this thread for "sleep" but did not find much discussion relative to my concern. So here goes. Thanks for your patience.

In April after the second biopsy I was diagnosed with GCA. I have was on 60mg Prednisone from early April until a week ago when they dropped it to 50mg.
My biggest problem is insomnia. It may be slightly better at 50mg than it was at 60mg but I'm still really struggling to sleep.

I go to bed dead tired and fall right asleep. I then sleep one or two hours and I wake up. Usually I can go back to sleep at that point and sleep another hour maybe two before I wake up again. The third time I wake up (now about 2:30am) I get up and take a chewable melatonin. Back to bed and after a little tossing and turning I can usually zonk out for another hour. The 3:30 wake up is the worst. I may take another melatonin and try to get back to sleep but I rarely fall back to sleep at this point.

I never had any trouble sleeping before the GCA and Prednisone. I could sleep 7 or 8 hours straight and wake up feeling fine. Now 4 or 5 hours sleep in a night with only two interruptions is a good night sleep. I'm trying to finish my last three months of work before retirement and I feel like I'm just dragging myself through the day and trying not to fall asleep at my desk. I had a productive and enjoyable career and I really hate the feeling that I'm limping too the finish line.

Can anyone point me to discussions about dealing with Prednisone induced insomnia? I'm not finding much on the web about it. The only advice I have been given is "take it in the morning". Thanks.

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Replies to "This is my first post so I apologize if I am in completely the wrong place..."

@jhinia - Hi from Tinkerbell. I finished my taper for GCA last October. I had a terrible problem sleeping from 60 mg. To 20 mg. I was told to try lavender oil on my feet. My feet smelled good but it did not help with the insomnia. I went down 10 mg every 2 weeks so you just need to hang in there. Also, I had never had problems sleeping until I got on the Prednisone. It seems to be a common problem. If you have any other questions I will be happy to try to answer your questions. I was on Prednisone 1 1/2 years.

Hello @jhinia, I would like to add my welcome to Connect along with @654321 @tinkerbell and others. I also have PMR but it is currently in remission. Do you currently take your prednisone dosage all at once in the morning? Can you talk with your doctor about possibly splitting the dosage between morning and evening to see if that might help?

Here is another discussion you might be interested in reading through.

> Groups > Autoimmune Diseases > Autoimmune Diseases and Fatigue
-- https://connect.mayoclinic.org/discussion/autoimmune-diseases-and-fatigue/

Have you been tested for sleep apnea? I found out last year that was causing a lot of my sleep issues.
-- https://www.mayoclinic.org/diseases-conditions/sleep-apnea/diagnosis-treatment/drc-20377636