you sure are going through alot! I have a question for as I have alot o crazy symptoms yet to be diagnosed. One symptom Intracranial Hypertension which my neurologist thinks i might have but is scared to do a lumber puncture because it can cause alot of harm I guess. Nothing has turned up on the normal MRI and CT angiogram, so I am wondering how you got diagnosed. Basically I have been in bed for 4 months, I have right temple muscle that swollen (not tmj), if i go and try do anything like go to the store I get nauseous dizzy, and then the light and sound become strange and my body feels light sometimes, get tension headache and all head is sore to touch and lost some vision in right upper eye, my hears get plugged like on a plane. I am just asking because this seems pretty rare, and I am afraid to do anything now, any info would be appreciated and thanks