← Return to Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

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@charann2000

Thank you for sharing this very valuable information with me, tinkerbell. I have had this for about two months now and actually thought it was related to my sinuses and I was going to a sinus specialist which took one whole month to get in to see him. Yesterday morning I saw him and began with mentioning the pain in the left temple and the left eye. He really honed in and listened to me closely....after doing a brief examination of my nose and several other questions which I answered pertaining to my sister having RA, he said I don't believe the temple situation is with your sinuses....it could be Temperol Arteritis. He said he would write an order for a CT Scan with contrast die of my head and the necessary bloodwork in order to make determination. He did not mention to me the possibility of going blind....I suppose he did not want to frighten me before a final diagnosis. Last night I went on Mayo.com and researched this and was horrified to hear how serious this could potentially be. The going permanently blind bothered me more than anything else and still does...I think I am in a panic mode right now. I am going tomorrow for all of the blood work and they are doing the CT Scan of the head on this Friday at noon. Right about now my temple is throbbing and I am afraid to go to sleep as I may wake up without vision. I wish that my Specialist would have stressed getting me into the diagnostic areas that same day, if possible. Right now, I feel like I am losing precious time! I hate the thought of worrying the entire weekend for the results and perhaps they will be able to hasten the process given my circumstances. If not, my sister has RA and perhaps I will ask her for some of her Prednisone to get me through the weekend until I can see a Neurologist. You can tell that I did not see this coming....I was blind-sided, pardon the ill pun! Once again, thank you for your input. I will let everyone know what is going on as soon as I get the test results!

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Replies to "Thank you for sharing this very valuable information with me, tinkerbell. I have had this for..."

so what happened with your diagnosis?