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← Return to Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)
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Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)
Polymyalgia Rheumatica (PMR) | Last Active: Jul 7 8:52am | Replies (353)Comment receiving replies
Hello @charann2000
There is currently another active discussion on giant cell arteritis here that you may want to read through:
— https://connect.mayoclinic.org/discussion/giant-cell-arteritis-20c716/bookmark/?ajax_hook=action&_wpnonce=e2b2fbfe6e
I’m tagging a few other members who have talked about giant cell arteritis to see if they can join in the discussion – @kari51, @marylynn, @crhp194 and @morninglory do you have any information that you can share with @charann2000 on giant cell arteritis?
I'd like to invite @crhp194 @morninglory @anya @sallygosse to join this discussion, as well; they may be able to provide some more insights. We have another conversation on GCA, (also known as temporal arteritis), which you might wish to view:
– Adjusting to life with temporal arteritis https://connect.mayoclinic.org/discussion/would-like-to-hear-from-people-that-have-gone-thru-or-going/
I hope @donnalc @lindy @prednisone4gca @MLeeB also return to share their experiences.
@charann2000 — do you have any questions about giant cell arteritis?
John
Replies to "Hello @charann2000 There is currently another active discussion on giant cell arteritis here that you may..."
I got sidetracked to lots of discussions other than Temporal Arteritis, and am happy to finally be back where I belong.
I was diagnosed October 25, 2023. I kept going to my country Dr. they couldnt figure out what was wrong. I was weak, headaches joint and muscle aches, fever, scalp and jaw hurt,swelling. Then on Oct 25,2023 i woke up blind in left eye. So weak could barely get up. My husband ran me to eye Dr. after an hour of testing he called an opthmalogist friend . he said i think I know. ai was in to the surgeon for a biopsy in a matter of hours. Then i was srushed to another hospital and admitted for 10 days. they ran tons of blood test. ct, mri's of pretty much my whole body. Began prednizone immediately. by the end of the trip i had 4 surgeries and several auto ammune diseases. mine went to far. The steroids aren't working well. I keep having flareups badly. Im losing vision in the other eye. My aorta is involved. I am severely anemic. I have GCA, PMR, Scleroderma, RA and moly something. iron infusions several times a week. live with a port.said they are going to try one more drug. Actemra. I have tried several. aaaaaaaall my labs are out wack. i hate this disease, I am so depressed.
it's a journey. a very difficult one. keep chatting
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Thanks for trying to get me into the correct discussion group on this matter....I greatly appreciate it!