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Dizziness for over 2 years.

Brain & Nervous System | Last Active: Sep 19, 2018 | Replies (14)

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@oldkarl

@krissylamb Sad to say, but reading your report was very good for me. I finally found someone who is in my class of numbers of illnesses and symptoms, although you are far ahead of me in medical care. Mine is Gelsolin, a form of Amyloidosis. Just getting a diagnosis is a fight to the finish, I guess. But you have contributed to my diagnosis significantly. For a quarter century I have had a series of "..quarter sized lymph/serum filled sores oozing on the back of my head and neck." When one of them is hit fairly hard or punctured, it will bleed and ooze. Even a small child hitting me on the back of the shoulders or on the upper leg or arms will cause it to ooze. Once I happened to puncture one somehow, like with a needle or something. It oozed and bled for a couple days. It oozes foggy stuff the consistency of Elmer's glue. I don't know what it means, but I will find out. My story is at https://bit.Ly/1w7j4j8 "Amyloid and Old Karl"

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Replies to "@krissylamb Sad to say, but reading your report was very good for me. I finally found..."

I have goose bumps all over my body and immediately started to cry. I have never heard of anyone with these sores. I got one on my left arm one day walking up the stairs. It wasn't the store but my skin just tore off, I had no idea and I woke up from a nap with blood all over the sheets. And I had one of the sores early on break out on my ankle. The first test by doctor did was for Amylidosis, and it came back negative which is crazy because I al also have all of those symptoms. I read a report from this oncologist at UCSD, Dr. White, she said that she wasn't sure what was wrong with me because when she asked if I had something I did? Guess what, unfortunately every test she ran I HAD, including my anal sphincter not working, I could not pass the balloon test, DUH! I made them change their report to not say, "she says she has al man ental poisoning", it was even worse spelling. I realize now that once I said the word ELEMENTAL, doctors stopped listening. They still don't, hahagagahagahaga! That's my laugh at myself! I will read your story this afternoon. Thank you for the goosies!