Oh, my,@krissylamb, my heart goes out to you. One day we will share "war" stories. Suffice it to say, however, I believe you may have me beat.
I will say, however, that I was exposed to unnecessary radiation treatment as a baby, which resulted in my young adult years as being diagnosed with thyroid cancer. Two surgeries later, thyroid medication for life.
I have many conditions and not enough time or desire to list them all.
We are raising a wonderful boy who is the light of our life.
We have a child with several illnesses severe enough for permanent disability. Mental and physical illnesses alike.

Chronic pain, month after month of doctor's appointments and treatments, and one bodily function after another failing, is enough to put one's mind in a whirlwind of emotions.

Sometimes I feel like I just want to eat a carton of ice cream all by myself and binge watch Netflix until I am bleary eyed. But we homeschool, so that is not an option. Also, I'm Type 2 Diabetic. So unless I like comas, that's out as well.

Sometimes I feel like I don't have the desire to go anywhere or do anything. During those times I can easily be a hermit. Then one day, I wake up and there's this feeling of happiness.

You have found yourself in a place where folks are going to be in a hurry to help you. Many of us have been through many traumatic illnesses and situations , not exactly like yours but painful and heartwrenching nonetheless.
I admire your courage and tenacity. I respect you so much for not giving up. I hope that you will return and let me know how your appoint ment goes . There are mentors and moderators here who know patients with many of the same conditions as you are experiencing. I will be looking for information myself and for research . I am old as dirt, so it will take me a bit longer than some of these youngsters around here.

Thank you again for sharing this part of your journey. Let's "talk" with each other soon! Love and Light,
Mamacita