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Dizziness for over 2 years.

Brain & Nervous System | Last Active: Sep 19, 2018 | Replies (14)

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@krissylamb

I have a lot of health issues do to elemental toxicity poisoning by inhalation while working at a Biotech Co. 2010-2011. All the symptoms started immediately but I was told by the Chief medical officer that mercury poisoning was just a myth, so I never thought about it again until July 1, 2016 when it was confirmed. During the past 8 plus years, I have gotten worse but at the moment I have severe vertigo and orthostatic hypotension together. I can handle one or the other just not both at the same time. I believe that SNF small nerve fiber neuropathy is finally going crazyin my head. I just had an MRI. Because I have 2 screws on the right side and 3 screws on the left side holding my jaws together due to TMJ, the MRI was unable to see what it needs to see. Of course my Neurologist is on vacation. I truly believe I have MSA-c due to evidence from prior MRIs showing problems with my cerebellum and basal ganglia, side effects of either not being able to urinate which caused a very bad bladder infection or having to urinate with severe urgency. I have gastroperisis, lemmel's syndrome, 3 large periampullary diverticula doudenums pressing on my ampulla of vatar which makes having a bowel movement almost impossible. Luckily I have chronic diarrhea because none of my sphinchters work and my anal sphincter is the size of 5mm x 10mm with a hard stenosis, so if feces is larger than a small grape, I have to move it aside for the diarrhea to pass. I have trigeminal neuralgia, migraine headaches, daily headaches, every type of headache, my hands do not work at all and that is after having carpal tunnel surgery for both. My neck and lower back both have severe DDD, my neck needs surgery. I will say one good thing, the 10mcg/hour Butrans patch has stopped my nighttime neuropathy paun completely. My fingers still swell but I'm able to sleep. And even if I have insomnia, I do not have nighttime neuralgia. 8 years to find something to fix that! I still get shooting pains from my feet during the day. Oh, and I was just told that my ECG came back abnormal, so I will be seeing my cardiologist tomorrow. It would be nice to have one good day of no pain of any kind. And one doctor who could help with all of my problems. I see myself in a wheelchair very soon. More than half the time, my legs are completely numb from my knees down. These are just 10% of my medical problems, ugh! Thanks for listening. And now the time to get up and get dressed so my husband can take me shopping to buy groceries for my wonderful 27 year old schitzophrenic son. My son and I used to do this together for a fun outing, but I cannot drive anymore. Unable to eat any type of healthy food and to nauseated to want to eat, my weight is down to 100 pounds. Not good

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Replies to "I have a lot of health issues do to elemental toxicity poisoning by inhalation while working..."

Oh, my,@krissylamb, my heart goes out to you. One day we will share "war" stories. Suffice it to say, however, I believe you may have me beat.
I will say, however, that I was exposed to unnecessary radiation treatment as a baby, which resulted in my young adult years as being diagnosed with thyroid cancer. Two surgeries later, thyroid medication for life.
I have many conditions and not enough time or desire to list them all.
We are raising a wonderful boy who is the light of our life.
We have a child with several illnesses severe enough for permanent disability. Mental and physical illnesses alike.

Chronic pain, month after month of doctor's appointments and treatments, and one bodily function after another failing, is enough to put one's mind in a whirlwind of emotions.

Sometimes I feel like I just want to eat a carton of ice cream all by myself and binge watch Netflix until I am bleary eyed. But we homeschool, so that is not an option. Also, I'm Type 2 Diabetic. So unless I like comas, that's out as well.

Sometimes I feel like I don't have the desire to go anywhere or do anything. During those times I can easily be a hermit. Then one day, I wake up and there's this feeling of happiness.

You have found yourself in a place where folks are going to be in a hurry to help you. Many of us have been through many traumatic illnesses and situations , not exactly like yours but painful and heartwrenching nonetheless.
I admire your courage and tenacity. I respect you so much for not giving up. I hope that you will return and let me know how your appoint ment goes . There are mentors and moderators here who know patients with many of the same conditions as you are experiencing. I will be looking for information myself and for research . I am old as dirt, so it will take me a bit longer than some of these youngsters around here.

Thank you again for sharing this part of your journey. Let's "talk" with each other soon! Love and Light,
Mamacita

Krissy, Hi I'm Jennifer. You mentioned that you need spine surgery on your neck and you are describing a lot of symptoms that might be spine related. Do you have stenosis with spinal cord compression? I had this and had spine surgery at Mayo that resolved all of my spine issues. Is that something you are considering? These are the symptoms that caught my attention- bladder & bowel control, stabbing pains in your feet, bad headaches, vertigo, trigeminal nerve pain, nausea, control of your hands, numbness in your legs. All of that could be caused by a spine problem, and it could be caused by spinal cord compression in your neck. I had to look up the MSA-c symptoms and they too over lap with spine problems in gait and balance disturbances. I had foot drop, an uneven gait and some vertigo if my neck was spasming. You really don't want to diagnose yourself because it could be caused by something else, and there could be treatment that helps if you get it right. I had a long journey figuring out my own spine issues before I came to Mayo, and 5 surgeons turned me down because my symptoms were unusual. They all made a mistake in thinking that a cervical spine stenosis could not cause problems with legs and balance. It was when I found medical literature with a case like mine that I contacted Mayo for help. I think spine specialists should have been able to figure this out, but they didn't listen to me and I had to get another and sixth opinion. None of my doctors would bring this to the attention of surgeon #5 who had just dismissed me, so my only option was to go elsewhere. I also had to overcome a lot of fear to come to Mayo and ask for spine surgery, but it changed my life and gave me back my most precious gift which is to be able to do my artwork. I was loosing control of my arms and lost a lot of muscle because of spinal cord compression, and having cervical surgery is the best decision I made and it changed my life. I had a lot of fear, but I decided that fear would not decide my future and I didn't want to become disabled. I figured out how to get past all the anxiety I had and was calm and relaxed on my surgery day. I would encourage you to see a spine specialist to discuss your options. Let me know if there is anything else I could answer for you. I surprised myself and never would have believed that I had the courage to do this, but I found that inside and I am grateful every day for this journey and life lesson. There are also environmental medicine doctors who detox metals that might be able to help you. I had all my old dental silver amalgam fillings removed and replaced with safer material by a biological dentist. Prior to that, my antibodies against my thyroid for Hashimoto's were off the charts and could not be measured. After getting the fillings with the mercury out of my body, the levels dropped a lot and could be tested and over several years, my thyroid function has improved and I take less thyroid meds now.