Replies to I'm 47.I have multiple autoimmune disease, immunoglobulin defiency disease, dysautonomia w POTS and EDS. I have…

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Autoimmune Diseases | Last Active: Mar 25 12:23pm | Replies (39)

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@monikamouse

I'm 47.I have multiple autoimmune disease, immunoglobulin defiency disease, dysautonomia w POTS and EDS. I have this condition. Very painful ears. I used to never be able to bend them, now they fold down. Can't tolerate glasses on my nose.

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Replies to "I'm 47.I have multiple autoimmune disease, immunoglobulin defiency disease, dysautonomia w POTS and EDS. I have..."

Nibor63 | @nibor63 | May 31, 2019

Any diagnosis. I have the same thing.

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John, Volunteer Mentor | @johnbishop | Jun 3, 2019

Hello @monikamouse, I see that you have recently joined and would like to welcome you to Connect. You mentioned you have very painful ears. There is another discussion on Connect that you might want to read.

> Groups > Ear, Nose & Throat (ENT) > extreme outer ear pain
-- https://connect.mayoclinic.org/discussion/extreme-outer-ear-pain/

Has your doctor given you any suggestions or treatments to help with the ear pain?

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