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Hello @rpwarriorlady, welcome to Connect. I don't have relapsing polychrondritis but the following members have discussed it in a post. @jentallygirl, @marilly, @jennyt, @nibor63, @cherfenn, @ellienewfan can you share any information with @rpwarriorlady ?
The National Institutes of Health has some information here for relapsing polychondritis:
— https://rarediseases.info.nih.gov/diseases/7417/relapsing-polychondritis
@kanaazpereira mentioned the following discussion on Connect in an earlier post where a few members have posted about relapsing polychondritis:
– extreme outer ear pain https://connect.mayoclinic.org/discussion/extreme-outer-ear-pain/
When you diagnosed with RP did you have specific symptoms that led to the diagnosis?
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The diagnosis was confirmed recently, by 3 different Dermatologists, as well as my primary health care doctor after a biopsy during an inflammation flare up but have had symptoms and relapsing flare ups for 23 years. That I have directly associated with this disease. As a child, I suffered swollen knee joints, hands and elbow tenderness. Specifically over the last 6 years redness, pain swollen lymphatic nodules, oozing sores in and around both ears in the vomiting, fevers unable to walk pain free I was even tested for Malaria. As it was thought to be a reaction to mosquitos, or insect bites. I was afraid I had Zika! But, RP.