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Overmedication with cancer and other conditions

Head & Neck Cancer | Last Active: Sep 23, 2018 | Replies (62)

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@IndianaScott

Very interesting and useful thread there! Thanks @alpaca aka Maureen 🙂 In my wife's case she was on a constantly changing stream of medications as they struggled with the constantly altering effects of her tumor. Initially it was a tough balancing act between her neuro-oncologist at Mayo, her GP at home, and our pharmacist. Early on our pharmacist was a huge help until our local pharmacy was sold to a chain and it was never the same pharmacist twice. I cringe when I think back to how much time I wasted re-educating pharmacist after pharmacist on who my wife was, what her condition was, and why she was on the cocktail she was on at that specific time. Grr!

Then there was the issue of doctor vs doctor, which put Kramer vs. Kramer to shame! Finally after a grueling 'duel', where I felt as if I were some bizarre type of Second, the neuro-oncologist finally convenience our GP to get out of the mediations loop (other than to be informed of any changes in meds or dosages). One professional ego took a hit and the relationship never recovered, but it was for the good of my wife so I was happy to give up the relationship I had with the same GP.

My wife was on a medicinal cocktail of 32 doses a day. Keeping them straight required a spreadsheet to keep track of the time of day and doses. Luckily, once my wife went into home hospice, her nurse transferred all her meds to another smaller pharmacy with a more stable staff and who delivered. They worked together hand-in-glove. At this point her meds were often changing daily so it was crucial for there to be solid, knowledgeable communications between all the medical pros! This was also critical when we had to go from pill-tablet-capsule form to all liquids for her meds since the liquid form often caused them to act differently, on a different timeline, absorption rate, etc. Unfortunately for future patients in our area, this pharmacy was also swallowed by a national chain and no longer offers the same level of service.

With all the progress in technology I would think information sharing would be simpler regarding patients, their medications, and the providers involved. Hopefully this will improve quickly, but give the conflicting forces of the profit motive, I have my doubts.

Strength, courage, and peace to all.

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Replies to "Very interesting and useful thread there! Thanks @alpaca aka Maureen :-) In my wife's case she..."

@IndianaScott What an incredible story about meds, pharmacies and egos! You are quite the veteran of medication challenges.

Teresa

@IndianaScott I have a small family owned pharmacy that I love to use. The pharmacist guess to our church, so we've known her for years. My husband uses a pharmacy in a chain grocery store, but thankfully has had the same pharmacists for several years. (Odd I know, but it works for us. Lol) Sadly, our insurance forces us to use a mail order for certain prescriptions. I hate using a pharmacy that doesn't know us, but financially we have no choice. I like that Mayo has a list of all his medications and updates them every time he has an appointment.

@jodeej How lucky you have consistency with your pharmacies! That is so nice! Big or small, knowing the person behind the counter knows a bit about your history is comforting for sure! I spoke with one of the pharmacists at our chain and she explained the chain moves the pharmacists around their various shops, keeps them under a certain number of hours and thereby keeps them on the books as part-time and not fulltime employees. All part of the games they play these days I guess! Perhaps one day the pendulum will swing back!

Strength, courage, and peace!