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Pituitary cancer - spread to bones and liver
Cancer | Last Active: Apr 17, 2018 | Replies (6)Comment receiving replies
Hello @unix4fun
I see that this is your first post on Mayo Connect - welcome! I appreciate your post regarding Pituitary cancer. Rare cancers can be troublesome since not all doctors are familiar with them and that makes finding treatment more challenging. I have a rare form of cancer as well, neuroendocrine tumors, and the choices for treatment are not in abundance.
As you mentioned Mayo, do you live near one of the Mayo facilities and is that where you are being treated now? Here is a link to the Mayo website where this type of cancer is explained more fully, https://www.mayoclinic.org/diseases-conditions/pituitary-tumors/symptoms-causes/syc-20350548
If you are comfortable sharing more information: How long have you had this diagnosis and what were your first symptoms? What types of treatment have you had so far?
I look forward to hearing from you again.
Teresa
Replies to "Hello @unix4fun I see that this is your first post on Mayo Connect - welcome! I..."
Thank you for providing some more information about your diagnosis and treatment. I'm glad to get to know your story a bit better. You must be very thankful to have found Dr. Young at Mayo.
Were the tumors found by MRI, CT scan or general x-ray? Do you have a lot of bone pain?
I look forward to hearing from you again and follow your treatments and your progress.
Teresa
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I live in St. Louis Missouri area.
Actually the doctors here wrote me off and couldn’t figure out what was producing so much ACTH so I went to Mayo in Rochester. Saw Dr Young and he immediately said I have a tumor somewhere else. They did a pet scan and found multiple tumors on mostly my hip and spine. Biopsy showed them as being pituitary corticotropin secreting carcinoma metastatic to bone.
Ive had radiation but not chemo yet. Had to take care of some other issues (surgeries) first.