Hi, @abd123 - welcome to Mayo Clinic Connect. I'd love to introduce you to some other members who have talked about diabetic neuropathy, like @lyssia @holhealthcare @deeinpa @barbarn @mamacita @chromebottle50 @bernese53 @clownscrytoo @hgs797 @fonda @ujeeniack @danybegood1. @jeancary @loisogden @nikkig @allisonsnow @tucsonguy and @johnbishop may also be interested and know of other members who might benefit from joining in this discussion.

While waiting for others to become involved in this conversation, I thought you might be interested in some Mayo Clinic information on diabetic neuropathy: https://www.mayoclinic.org/diseases-conditions/diabetic-neuropathy/symptoms-causes/syc-20371580.

@abd123 - do you have a question or concern on diabetic neuropathy you'd like to share with these members to get started?

Hi @abbiedem1 d123, I would like to add my welcome to Connect along with Lisa @lisalucier.

@abd123 can you share a little bit more about your diagnosis of diabetic neuropathy? Are you able to keep your diabetes under control?

John

@abd123 I was type1 diabetic since 1975 and developed complications including peripheral & autonomic Neuropathy. The peripheral affected my hands ( numbness, tingling, burning, aching, throbbing). The autonomic came in the form of gastroparesis (nausea, vomiting, cramping stomach pain, bloating, constipation & diarrhea). Whenever I was able to tighten up blood sugar control the symptoms would gradually improve. In 2005 I had a pancreas transplant and the neuropathy disappeared for awhile. I’ve had several bouts of gastroparesis since then and got this under control with a medication and some dietary changes. I take a very small dose of erythromycin as needed up to 4 times a day (at meals & bedtime). I usually only take it once a day at the biggest meal of the day. It is an antibiotic but has stomach motility properties that help with gastroparesis. Dieticians also suggested smaller meals (like a snack) more often and to limit fresh fruits, vegetables & high fiber foods. For peripheral neuropathy the hand symptoms disappeared after 2005. Seven months ago during a routine dermatology screening I was diagnosed with planters warts on my feet. That led to 2 months of ineffective self treatment (soaking, scraping, OTC warts gel & taping). I then went to a podiatrist and have been having liquid nitrogen freezing &/or acid treatments ever since. This has been torture and feels like the way other diabetics describe diabetic nerve pain symptoms on their feet. The pain just starts to subside after 4-6 weeks when it is time to return for more treatment! I’m concerned that I’ve deloped a new neuropathy in my feet associated somehow with the warts treatment. I discussed my concern with my endocrinologist who felt that my problem is due to the immune suppression from my transplant and not being able to fight off the virus causing the warts. The podiatrist felt my problem is due to the treatments working and having new & more sensitive skin (but I still have the warts). I also have CKD due to diabetes and will at some point need a kidney transplant if/when my kidney function further declines. In September I was at Mayo for my annual pretransplant review. I expressed concern about these warts, the pain I’m having and neuropathy to my team providers there. No one gave an opinion about neuropathy but suggested I inquire about the possibility of some other kind of treatment. I did that at my podiatry follow up/ treatment on October 2nd and was referred back to dermatology to find out if laser or some kind of injections would be appropriate for these warts. That will be in November. So I have a history of 2 kinds of neuropathy from diabetes and perhaps something new. Whatever it is I hope it gets resolved and the warts dealt with as well!