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Hi, @sharonalllen - You'll note I moved your post to this current discussion, "Spasticity," so that you can meet other members talking about this similar situations. Click VIEW & REPLY in the email notification, and you will be able to read through the past messages on this topic.
I'd also like to introduce you to @12271997 @hopeful33250 @oakbourne @aarniek @magg @maryar and others. I trust they will have some insights for you on losing more mobility every day as well as the intrathecal baclofen pump you are waiting to have put in.
Here is some Mayo Clinic information on on baclofen https://www.mayoclinic.org/drugs-supplements/baclofen-intrathecal-route/description/drg-20062155.
How are you feeling about this pump you will be having put in, @sharonalllen? Do you have a date for the surgical procedure for the placement?
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reply to@lisalucier
Thanks so much for moving me to this discussion. As to how I feel! I have been researching this subject for a while at the insistence of my Dr., quite frankly I am concerned about the side effects listed, these are the same side effects I am experiencing now with the oral. I go for my pre-test January 10, getting nervous! Am waiting to receive the CDB to try, should arrive today. Keeping my mind open!