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Losing a child is an unimaginable heartache. Don’t ask yourself why - it will only make you crazy. I am so very sorry. I agree totally with what others have commented about “to treat or not to treat!” I have been on both of those journeys. What I will say is what my ID doctor told me. Good nutrition and less stress are key. She told me she advises her Aids patients to try guided meditation with the attitude of focusing on that one area of the body (lungs for us) that is diseased and to see it as whole and healthy. It kind of goes back to what I see as mind over matter, but basically our brains are very powerful, and if we can have that kind of focus in a meditative way then we have a chance of healing ourselves. She says it is scientifically based, and I do believe that. I am willing to do anything that will give me more time! God bless you real well. Sending you a hug and prayers.
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Cathen loOK at it this way, it could be worse, at least you can still get around and do things. My ID doc told me some of her patients can't even get out of bed. So let's be thankful together...
I actually wished they would have treated me a bit sooner, sometimes I think it would have been easier to get rid of if less bacteria was allowed to grow and also less changes would have been allowed to take place. I know they don't want you to start then stop and avoid resistance. I was told not to let any MD prescribe Azithromycin and to save that for when I needed it to treat MAC. That way I would not develop resistance. I think everything would depend on how your lungs look on CT
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Thank you Irene, Good nutrition is the hardest part. I was doing well. I have had this 3rd NTM since at least 2012. I have lost a lot of weight and been sick with different illnesses since losing my son. That got me wondering why I am not being treated. I just sit and worry about it. I may look in to meditation. I have heard this before I'm sure i could learn to do it. Thank you for your prayers. I need them. Cathleen.