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Hi @Cathln I was diagnosed with MAI/MAC and bronchiectasis in Dec 2016 after coughing up blood and having a nodule removed from my left lobe. I haven’t been put on any antibiotics as I have no symptoms. I use an Aerobika for lung clearance twice a day to help with the bronchiectasis. There are others on this forum who also have not used the antibiotics and there are those that have. Some use natural remedies others use saline nebulizers to help clear the lungs. Everyone’s situation is different but we all have MAC in common. I’m so sorry about the loss of your son. I can only imagine how hard it must be for you. I believe our emotional health has so much to do with our physical health and well being. Wishing and praying for all the best for you.
Gina K.
Replies to "Hi @Cathln I was diagnosed with MAI/MAC and bronchiectasis in Dec 2016 after coughing up blood..."
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Thank you for your kind words Gina. Life is not the same, never will be, but i have 2 other children, although grown, they need me. I have a grandson and he is the reason I get up everyday. Thanks too, for your answer regarding lungs . Some days I honestly don't remember I have MAC, or bronchiectasis. I do have an aerobika aslo, but I have an easier time clearing my lungs just by laying on my back. I get so much out that way, then I am finished until the next day. I sit, and worry all day, and my mind went to my lungs. I know, I had surgery immediately when they found Kansasii...I was very sick. But, I don't feel like that at all, and I am happy I don't, but wondered too if I just had a rotten doctor. I had him 14 years, and he has done nothing, but say go home and live your life. So, as I am also allergic to th the one class of drugs that work on MAC, I worry about that too. I am seeing someone for my emotional health. Not doing very well, and it has started taking toll on health. I appreciate your answering. Thank you, Cathln.