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Vagal stimulators for controlling children's seizures?
About Kids & Teens | Last Active: Nov 27, 2018 | Replies (9)Comment receiving replies
@lmcquade
May I ask how many seizures your son had prior to his VNS and what medication/s he was on. How many seizures does he have now, actual seizures not electrographi? Also curious if he has had any side effects from the VNS?
Wishing your son complete control soon.
Jake
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Its been hard to know how many seizures he had before the VNS, at the times that his seizure disorders are not well controlled he can have more than one seizure per day. Now, he has about 1 breakthrough seizure every other week. His last break through seizure was 11/13/18.
We have tried several medications: Trileptol, Lamictal (he had the beginning of the skin reaction and we immediately discontinued), Zonisamide (that was a doozy of a drug for him, I would consider twice before every using that one), vimpat, and Banzel. Banzel seams to work moderately well for him consistently over time.
We also take an ADHD drug for attention.
We also did the modified atkins as a diet modification- which we are going to implement again after the new year.
In terms of side effects of VNS he has tolerated it very well. He has had two incidences of hallucinations both immediately following one of the calibrations. I would go through the surgery again for the control we have gotten and also for the potential for more modifications to the dosing as he continues to grow.