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← Return to Vagal stimulators for controlling children's seizures?
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Vagal stimulators for controlling children's seizures?
About Kids & Teens | Last Active: Nov 27, 2018 | Replies (9)Comment receiving replies
Hi @mmas,
I'm tagging @jenkie @shanef86 @carnation @bellap @carhowell @hermsenk who have all shared their or their child's experience with vagus nerve stimulation VNS.
In the meantime, here is some information from Mayo Clinic on vagus nerve stimulation http://www.mayoclinic.org/tests-procedures/vagus-nerve-stimulation/home/ovc-20167755
@mmas, is the ketogenic diet helping your daughter?
Replies to "Hi @mmas, I'm tagging @jenkie @shanef86 @carnation @bellap @carhowell @hermsenk who have all shared their or..."
We actually never started diet. Our neurologist is out of MA and we currently live in FL. It needs to be closely monitored so we decided to wait.
Thank you for your thoughts. From what heard it's obviously not 100% effective abc at this point I wouldn't want to put her through something like this if it's doesn't have more of a success rate.
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I have heard much more negative things about VNS than good although only about adults. I had a friend who had one and although it didn’t totally control his seizures he felt it helped. He died while in Status Epilepticus. I was offered one but refused it and surgery too. VNS does come with potential side effects. Breathing problems, coughing, heart trouble, changes with your voice any quite a few others. I’d rather have an occasional seizure than a VNS any day. Good luck to your son and you.