Alternatives for pain management

Posted by grandmaR @grandmar, Mar 31, 2018

Hello!
I was wondering if anyone tried cryo therapy or medical marijuana for pain management. If you did, how did they/it work?
Thanks
Ronnie (GRANDMAr)

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@johnbishop

Hi Eve @hosta, I had not heard of cryotherapy before so did a little searching and found some information that may help.

From the FDA - Whole Body Cryotherapy (WBC): A "Cool" Trend that Lacks Evidence, Poses Risks
-- https://www.fda.gov/ForConsumers/ConsumerUpdates/ucm508739.htm

Harvard Medical School - Cryotherapy: Can it stop your pain cold?
-- https://www.health.harvard.edu/blog/can-cryotherapy-stop-your-pain-cold-or-is-just-a-lot-of-hot-air-2018041813612

American Academy of Dermatology: Whole body cryotherapy can be hazardous to your skin
-- https://www.aad.org/public/skin-hair-nails/skin-care/cryotherapy

It would be interesting to hear from members who have tried cryotherapy.

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Thanks John for the information on Cryotherapy. I don't believe that it sounds like something I would like to try. I don't like to be cold. I just keep praying that the doctors will come up with something that could help, But as some one said "there is not magic pill". I would be interested to try most anything, except being "frozen"!.

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@hosta

Thanks John for the information on Cryotherapy. I don't believe that it sounds like something I would like to try. I don't like to be cold. I just keep praying that the doctors will come up with something that could help, But as some one said "there is not magic pill". I would be interested to try most anything, except being "frozen"!.

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I don't remember the details of what I read about cryo but it definitely wasn't about the lowering of the body temperature. It was more like a laser probe but uses freezing instead. It apparently stops the pain sensors from sending signals but does not damage the nerve itself. I'll try to find the article that I read. It was very encouraging.

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@knowles

Hi All, heard some wonderful ideas. Most of them I’ve tried, a few I haven’t, and will put on my list to check them out. My problem is, nothing last. A few things have worked extremely well the first time I’ve used them, up to 9 hours of relief on one product, however, the second time: back to the 4 hour time window. I have to be sure I medicate/treat my pain at the first inkling or it gets out of hand really quick and I’m sure we’ve all been there. One thing I’ve notice is that no one has mentioned ESSENTIAL OILS (EO). I’ve had a lot of success using EO, all natural with no side effects. I suggest an App ‘Reference Guide for Essential Oils’ cost $6.99, if you are interested; to educate yourself b4 you start to buy. EO’s can get expensive, but don’t have to if you are educated on which ones work for pain. Even Lavender will work for muscular pain. Thank you for all the ideas. One thing; Acupuncture worked great for me in the beginning. My Acupuncturist took me as far as he could in about 18 months - 2 years and cleared up a host of physical problems and pain I was having. We just could not clear the pain in my lower left leg, ankle, and upper left buttock along the panty line. Not for more than the day I saw him anyway. Once the pain was relieved for 2 days! I was estactic! Worked great for depression. Unblocked all of that. Wish all of you the greatest of success in finding that one thing that cures your pain. Don’t forget to pray, it works!

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I am new here and desperately seeking information about pain relief. I had back surgery in 2001 for severe scoliosis: fused my spine from C7 to L4 and inserted titanium rod held with clamps on my spine. The good news is that I am much better shape than I would have been. I had a wonderful surgeon who gave me a new lease on life for someone that would have been completely hunched and twisted by my age now of 66. However, there is pain that needs to be reckoned with. I will suffice to say that I have tried most EVERYTHING except the spinal stimulator which I came very close to doing. I was working with a Pain Management Group and tried all the so-called topical and oral pain relievers with no success. The only things that worked at all were the ones that make you loopy or addicted which I will not do. I guess the Cranial Electrotherapy Stimulation by way of Alpha-Stim or Fisher Wallace Stimulator has been around for awhile but I am just now discovering its existence. It is ironic as one method my physician suggested that I try was an antidepressant as its resulting effect on the brain is to alleviate pain in the body. I refused due to the side effects but then found the CES devices. In my book, this looks to be as effective as the spinal stimulator that you have surgically hooked up to your spine without the surgical permanency.
Has anyone tried either one of those devices that have electrodes that transmit impulses to the brain, mainly for the cessation of depression but with the wonderful side effect of making the brain not think about the pain in the body?

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Regarding the spinal simulator we looked into this also. However, after much research and input from some doctors we decided not to have this procedure done. Reasons: was told that 20% of these procedures have to be redone within five years, effectiveness wears off with time, doesn't cure all nerve pain areas, and most important are the possible side effects. You should ask your doctor what these are as I don't want to advise you one way or another but do press your doctor for "ALL" side effects. Some can be serious but I can't tell you what the probabilities are as the developers of these devices won't release this data.

My other question regarding these devices is what is the affect on healthy nerve fibers that are in the same vicinity as the stimulator probe? Are they also affected and in what way? My concern was that if pain signals say from healthy nerves is affected then I would lose the function of these nerves. I was told they are different??? Don't know why this would be. Anyway, do your research and come to your own conclusions as apparently some people have had success with these stimulators. Good luck.

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.. I (a 70 yo) have had multiple spinal laminectomies and surgery to alleviate discomfort from spinal stenosis within the past 3 years. I was left with chronic pain (#6) daily. I started using CBD about 5 months ago and my pain decreased to about #3. I am no longer depressed and once again enjoy going out. I have no side effects. It takes time to adjust dose and frequency (currently every 4 hours) but I strongly encourage you to try it. I order oil drops from Amazon and have applied for the appropriate license so I can buy it locally.

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@jimhd

Right now, the pain that I'm dealing with is peripheral neuropathy pain in my feet. I tried without success every medication for neuropathy pain, as well as a number of other meds not specifically for neuropathy. I was happy if all they did was nothing. So many of them had side effects from minor to serious enough to be hospitalized. I had a spinal cord stimulator implant in June of last year and the pain was greatly reduced, but not eliminated. Over the past few months, I believe that the neuropathy is progressing, and along with that the pain. I take morphine sulfate contin, which is the only thing that has ever helped, along with Meloxicam and NSAIDS.

I've tried marijuana, which is legal here in Oregon, but it didn't help with the pain, and is too expensive. I have prescription lidocaine cream that I put on my feet to numb the pain. That gives me short term relief. Capzasin cream is said to help with nerve pain, but it didn't help me. My sister is sending me a spray that she has found very effective for pain control. I tend to be quite skeptical about anything that purports to be a miracle cure. But I'm willing to give things a try.

I'm looking forward to seeing what others have to say in this discussion.

Jim

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Please consider going to an integrative pain specialist. I was very skeptical about going but I finally pushed myself enough to just do it. I needed the help. My doctor prescribed oxytocin troches and ketamine troches. Somehow they work together for pain and they work great! I have peripheral neuropathy and it works better for the pain than the opioids did. I had fentanyl patches and tramadol for about 15 years on top of lyrica. I still have tramadol and lyrica but was weaned off the fentanyl patches because of the big opioid crisis. Since the oxytocin and ketamine has been helping so far the doctor is considering ketamine infusions. The ketamine kind of just numbs the pain for awhile.

Please let me know if you give it a try and how it works out for you. Good luck and take care!

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@cj101

I am new here and desperately seeking information about pain relief. I had back surgery in 2001 for severe scoliosis: fused my spine from C7 to L4 and inserted titanium rod held with clamps on my spine. The good news is that I am much better shape than I would have been. I had a wonderful surgeon who gave me a new lease on life for someone that would have been completely hunched and twisted by my age now of 66. However, there is pain that needs to be reckoned with. I will suffice to say that I have tried most EVERYTHING except the spinal stimulator which I came very close to doing. I was working with a Pain Management Group and tried all the so-called topical and oral pain relievers with no success. The only things that worked at all were the ones that make you loopy or addicted which I will not do. I guess the Cranial Electrotherapy Stimulation by way of Alpha-Stim or Fisher Wallace Stimulator has been around for awhile but I am just now discovering its existence. It is ironic as one method my physician suggested that I try was an antidepressant as its resulting effect on the brain is to alleviate pain in the body. I refused due to the side effects but then found the CES devices. In my book, this looks to be as effective as the spinal stimulator that you have surgically hooked up to your spine without the surgical permanency.
Has anyone tried either one of those devices that have electrodes that transmit impulses to the brain, mainly for the cessation of depression but with the wonderful side effect of making the brain not think about the pain in the body?

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I've had Alpha-Stim for 7 years. I was going through PT for my back pain and the therapist put these electrodes on me, set the device for 20 minutes and left. Then she came back in, put clips on my ears set the device for 20 minutes and left. I only had about 20 minutes left of my PT and thought she just did that because she wanted a break, too lazy to work like we usually do. Boy was I wrong. That night I slept better than I had in some time. Not once did I wake up due to pain. The next morning I got up and was surprised by how good I felt. So I skipped my normal pain meds. At my next visit she asked how I did, then prescribed a unit for me to have at home. Recently the electrodes broke, and they said they changed the leads so I'd have to get a new unit. During this time I've had to take pills for sleep as well as more pain pills.

So in my experience, it gives me a general feeling of wellbeing, helps me sleep, and cuts my pill consumption by 75%. I had forgotten how effective it was until it was not available for me anymore. I hear all these stories about opioid addiction, but with the Alpha-Stim, I have no problem going from 6 pills a day to some days none.

The only negative about the Alpha-Stim is it takes time. You have to have the time to put them on and sit there for 20 minutes. I can place the electrodes by myself, but it's much easier if I have someone else to precisely place the electrodes. Then I need another 20 minutes for the electrodes clipped to my ears. Where a pill only takes a second to pop it in your mouth and swallow, however, one never knows how much damage those pills do to your organs, especially if you're not drinking enough water to properly flush them out of your body.

But, I can put the leads on my back and read for that 20 minutes, putting them on my ears it's difficult for me to read during treatment, it does seem to affect my vision during treatment. But I can close my eyes and rest.

So for me, if I had to pay the $1,200 out of my pocket, instead of my $8 copay for the drugs, I'd spend the $1,200. Although I like having both for different options to treat pain, if it was an either or, I'd take the Alpha-Stim.

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I use medical marijuana oil daily for severe arthritis pain. When I first decided to use it, I met with a marijuana consultant. He told me to use CBD oil and a little THC oil for the pain. I use .7 cc of CBD and .3 or .4cc of THC every 3 or 4 hours. I take it before eating and use it under my tongue. It really helps me. I have severe osteo arthritis in every joint, severe fibromyalgia and Sjogren's. Doctors want to operate on my thumbs but I have a low immune system and heart issues. Marijuana seems the be the best route. The pain in the top of my foot is awful and I will rub THC on it and it keeps the pain level down for about 4 hours. I also use Biofreeze spray on it. I have tried nerve blocs and injections of cortisone and neither of those worked for me. They actually made the pain worse- especially in my foot. I am careful with the THC. The consultant said the THC will help with the pain and the CBD will help control the effects of the THC and it does. My husband has diabetes and very bad neuropathy in his feet and he uses the same amount at night and is able to sleep. I tried acupuncture and liked it but I couldn't afford to keep up the treatments. The $25 CBD vial lasts for 2 weeks and the $25 vial of THC for 6 weeks. I hope this helps. Good luck.

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