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Exploring options for inoperable pancreatic cancer

Pancreatic Cancer | Last Active: May 24, 2018 | Replies (12)
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@edder

I have been diagnosed with stage 4 inoperable pancreatic cancer on the tail that has metastasized to my peritoneal cavity one month ago and do not have any symptoms. I will start round 2 of Folfirinox. I’m very healthy otherwise and exercise daily. I’m confused as I have no symptoms. Does anyone out there have any idea when I might start having some symptoms. Also is it true that 75 percent die within one year after diagnosed?

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Replies to "I have been diagnosed with stage 4 inoperable pancreatic cancer on the tail that has metastasized..."
nogginquest | @nogginquest | May 24, 2018

Sorry for the delay... living life while I feel good 🙂

I am so sorry to hear about your diagnosis. Last July I was diagnosed with stage IV pancreatic cancer. I was told I had less than a year to live. Today I'm living tumor free. I had a two inch tumor in the head of the pancreas and a dozen and a half in the liver.

I have been receiving Folfirinox/Folfiri since August. This past March I became eligible for radiosurgery and received five rounds in April.

Yes, the numbers are grim, but my oncologist said there are multiple treatments we can try if the cancer begins to progress.

I had symptoms when I was diagnosed, and it sounds like we have different types of cancer so I don't know when you'll experience the symptoms. However, be super grateful that you don't and go out there and live life now.

Try not to let the cancer thoughts consume your good days. I know... easier said than done.

Hang in there!

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