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Who else has Autonomic Neuropathy?
Neuropathy | Last Active: Jun 10 2:46pm | Replies (121)Comment receiving replies
Hi Jim,
Thanks for the post. I'm in year 20. You post an even more complete list of my symptoms except I don't have the back of the tongue issue but I do have the vibrations or tremor like issues, sometimes over my entire body. I was positive for the skin biopsy. Did your team use other test to make this more comprehensive diagnosis? Do you mind sharing what meds have worked for you?
Also, I eat but have to eat after I eat as I rarely feel full. I am not overweight. However, I do get heartburn in the evenings, nausea in the mornings, and cramping during the day. I've expressed many times over the last year that I feel like I'm disintegrating particularly in my spine. I was 5'11" since high school and 5'7" when last measured. I may be less than this now. Every now and then I feel 'normal' and my optimism returns and I think I'm going to kick this thing. And then I'm back at square one. It's a very frustrating and tiring disorder.
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@jager5210,
Are you saying you have lived with autonomic neuropathy for 20 years? I remember your saying your first symptom was numbness in the side of your face-that was my first symptom also, and it happened about a year and a half ago. Again, I wish I could give you some suggestions. I do sometimes take 25 mg of tramadol. It lasts all day, and it helps with my profound depression. It is the only thing that helps at all. I've tried amytriptolene, lyrica, cymbalta, gabapentin, and all kinds of anti-depressants. For sleep, I use an OTC product called Midnight. I tried medical marijuana, but it was very expensive and made me very anxious. I think I probably could have tried different kinds, but I gave up on it. As a woman who had cascading blonde hair, I can say the hair loss is the worst followed by the fatigue and stomach pain. I take Metamucil daily, and it works for digestion. Have you tried any of the drugs I mentioned? Also, I know there are drugs to help with the stomach motility. Recently, I have experienced profound muscle loss in my triceps and forearms. My arms look that an an 80-year old. I'm here for you.